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Because it's unthinkable to integrate the notion that patients may actually have a relatively good assessment of their bodies and that those "expectations" are essentially the equivalent of looking at a very dark sky at midday and saying it's probably going to rain pretty soon. If anything this...

This is not particularly useful for the GMC complaint, though correct on substance may be impacted by bad faith false equivalency and giving doubt to her credibility. Not that "no, u" is a valid defense but when "we prefer the results" for having cheated to get positive results and "those...

Which we already know. It's about $100B per year in economic losses. Even accounting for a large error it would only take a few decades to add up to a $1T failure. By any measure, a $1T failure that made everything worse is about as stupid as it gets. Insurance companies may profit handsomely...

Hadn't really thought about this but this is one of the harmful messages about the BPS "just try it" approach, that if something as ridiculous and devoid of any relation to reality as conversion therapy with a few extra steps is fine and dandy, promoted by respected institutions, then who is...

I don't think not caring is the issue. There are a lot of politics behind this and the NIH has a lot of liability for their past decisions. No doubt there is a lot of internal opposition to even what they are doing right now. We're a deeply unpopular bunch and those decisions are never...

There would be some value in getting the MS folks to understand that what's been done to us is aiming straight at them. I still commonly see MS people testifying to almost as bad an experience getting diagnosed. They already understand the harm that it does. But with the like of Chalder and...

Clearly, the solution to gaslighting is more gaslighting. Then you need a bit more gaslighting to "challenge" the damage done by the gaslighting performed to gaslight the gaslighting.

Thing is, it's all about hope and support. Disability with support and ongoing research trying to solve it once and for all is a completely different reality than being without support, in fact facing hostility all around, and with no significant research trying to solve it. It's the difference...

Food poisoning. Those gut-wrenching twists in the bowels? No damage? All an illusion. There is no spoonpain. How fortunate it is to know that.

It's really bizarre that randomized but non-controlled trials are skipped over. Is it because people just assume they don't happen? They clearly do, in fact they are the norm in BPS (and psychosomatic "research" since forever) and there has not been a single properly controlled BPS trial of ME...

This is more than mere absurd. There is a complete breakdown in the entire process that this passed approval, funding, review and publication. Everyone involved in this should be expelled from the profession and their entire career reviewed as suspicious. There is no excuse to allow something...

https://www.sciencedirect.com/science/article/pii/S0889159119310773 From a press release by the university: https://www.vai.org/pregnancy-related-depression-lena-brundin/ Hello tryptophan my old friend. I frankly find it doubtful that cognition, thoughts and beliefs, play more than a minor...

We badly need research that analyzes experiences and outcomes from those who participated in the "positive" trials. PACE reported no deterioration. This is obviously false. And frankly there's a good reason so much of the framing regarding the PACE data was about being able to identify...

Literally the main argument of every pseudoscience and self-help gurus out there: we can't show any objective benefits but you'll feel great and hopeful. Which is nice if you're healthy. Definitely useless when you're not. That's possibly the worst possible argument to use in this context...

According to the model they are not even sick so all this effort for unquantifiable subjective "improvements" is straight up pathetic. Impressive to "demonstrate" quantified improvements without quantitative markers. In a population of "CFS" with various different issues. The "positive...

Can't really see how that's economically feasible either. That's a big BPS thing, pretty much all the clinics seem to boast about every treatment being individualized. But on top of not delivering any benefits, that's not realistic. Resources are already insufficient, that's just never going to...

This is a ridiculous waste. The whole BPS is a pointless misuse of resources.

Suffers of headaches everywhere (i.e. everyone) rejoice: headaches aren't real we can all stop pretending now. Also spicy food is purely psychogenic. Because, you know, no actual damage. Ghost peppers for everyone!

I'm 100% all up for eye-patched giraffes riding sharks with curved swords. Doesn't help, but definitely doesn't hurt.

Like the way a group of crows is a Murder, a purposive sample of clinicians is a Judgemental? I can get behind that.