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The committee member list PDF was recently updated (9th May). There are numerous additions from the last copy that I have. GP - Chris Burton Dietician - Jenifer McIntosh Nurse - Caroline Kingdon Physician - Gabrielle Murphy Physician - William Weir Community Paediatrician - Alan Stanton...

Maybe quote Carol Monahan MP "one of the greatest medical scandals of the 21st century"

i'm not sure whether you mean distinguising the two illness, or whether you mean attributing certain symptoms to one illness or the other. If it's the former, I am always minded to think about the immune manifestations (sore throat, swollen glands, etc.). These are not a feature of PoTS. But as...

Great work John! I'm sure we'd be all grateful if in your own time you could collate the data and also let us know what hasn't yet been released.

Have just skimmed through this and will watch in full at a later date. Very telling. Very brazen about all the little slight of hand tricks his posse have used over time.

I started getting sore throats when my ME started. It was one of those additional syptoms that made me realise I was probably ill with ME rather than anything else - such as fibromyalgia. I wake up with a sore throat often. I go through periods when it isn't really there, or is better, but I...

I was just looking into this recently after he claimed as much on Twitter. Many of his papers in the late 80s and into the 90s are concerned with the biology of this illness even if they have a psychiatric slant. He claimed to have made some findings RE cortisol. Anyone have more information on...

this whole thing makes me fuming. i don't know if I'll make it through the whole show without punching something.

watched this last week. very well-done short film.

I wonder if you could get the charities to share this on their social media pages?

I think what this boils down to is that we have an 'identifier' but we don't yet understand why. Of course the impedance results are relevant - we just don't know how relevant.

CP is quoted in some of the media coverage. I agree. It's quite crazy that Ron Davis himself often uses the term CFS rather than ME or ME/CFS, given the state Whitney is in.

In a sense, the study does not lend itself to having results in the abstract. You could quote impedance results, for example, but they may have no direct clinical relevance. The main result is a sparation of ME patients from healthy controls.

https://home.bt.com/news/science-news/blood-test-for-chronic-fatigue-syndrome-may-be-on-its-way-11364358497775 Subtitle: "The test proves that the condition is linked to stress and not imaginary, say scientists." :banghead:

Eugh. I can see this spiraling out of control.... we just can't do nuance in 2019 can we? The Stanford press release is short on those key 'qualifiers' that frame the results in the wider context.

this is why we have to be careful. they're ready to pounce on any wrong move. we can't have a repeat of the XMRV scandal.

https://www.pnas.org/content/early/2019/04/24/1901274116 Here is the paper. Subscription required.

As far as I can tell, and unless something else is going on, the paper is embargoed until 3 pm ET. I imagine the news article should have respected that embargo and that is the reason why it has disappeared.

Excited to see this. PNAS is a high-impact journal and is of course multidisciplinary, which is an advantage. I worry with all the pressure on Ron and his team that they may try and rush things through. On the other hand, they are top-class scientists and know what they are doing.

there's no dosage info because this is an in vitro study. I'm not a biologist, but would assume it's hard to calculate dosages from these sorts of studies.