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  1. Arnie Pye

    Fortune: Why Instacart’s new CEO is also launching a women’s health startup

    I cringe whenever I see the word "complex" in association with diseases mainly associated with women. It implies that the "researchers" think it's all "mental".
  2. Arnie Pye

    BBC World Service programme on senses - woman who lost balance when closed eyes, etc.

    If I stand still and shut my eyes I will fall over. I'd be even worse (i.e. fall over more quickly) if for some reason I tried to walk with my eyes closed. The cause of my problem has been diagnosed - I've got Normal Pressure Hydrocephalus (which is a misnomer - pressure isn't always normal)...
  3. Arnie Pye

    Breathlessness and air hunger in ME/CFS

    I wondered if this article might be of interest here. There are some references to exercise, so you have been warned, but it isn't all about exercise: https://www.painscience.com/articles/respiration-connection.php Title: The Respiration Connection Subtitle : How dysfunctional breathing might...
  4. Arnie Pye

    Evidence-based psychological interventions for adults with chronic pain: precision, control, quality, and equipoise, 2021, Williams, Eccleston et al.

    Off-topic, sorry. I realised ages ago that there is some significance to the order in which authors are listed on any research paper or article, but I have never seen an explanation of what that significance is. Can anyone enlighten me?
  5. Arnie Pye

    IL-6 and hsCRP in Somatic Symptom Disorders and related disorders, 2021, van der Feltz-Cornelis et al

    I really don't understand this. hsCRP is alleged to predict a patient's risk of developing heart disease. See this link : https://labtestsonline.org.uk/tests/hs-crp Where does the apparent connection with childhood sexual abuse come from? And why are so many BPS proponents obsessed with...
  6. Arnie Pye

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2021

    I just wanted to make a minor complaint, sorry! The link I've quoted to your articles has never been up-to-date when I've gone to it. Currently, it is five articles behind.
  7. Arnie Pye

    Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain an RCT, 2021, Asher, Gordon et al

    If the pain had been investigated before and no cause had been found for it I think, in the UK, the NICE guidelines for "primary" chronic pain would get used, and they were written by sadists from the UK. So in answer to your question Where on earth would that be allowed in any medical system...
  8. Arnie Pye

    Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain an RCT, 2021, Asher, Gordon et al

    There always seems to be an assumption in papers spouting this belief, that tissue damage will always be found if it is there to be found. But this belief of the authors simply isn't true. Many, many people will have tissue damage that nobody looked for, or it was looked for by someone...
  9. Arnie Pye

    Inadvertant intravenous injections

    The bit that perturbed me the most about the video was the apparent risk of getting air bubbles into the veins or arteries, and that would be true for any injection.
  10. Arnie Pye

    Inadvertant intravenous injections

    There was no way that was a real vaccine shot, and I doubt that anything went into his arm, not even saline or vitamins. People are supposed to remove any air in the needle, as well as checking that the needle was not in a blood vessel. And injecting something is never done that fast, it would...
  11. Arnie Pye

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    Amitriptyline (Ami) and nortriptyline (Nor) both give me tachycardia at very low doses. Ami raised my heart rate to 150 beats per minute, and Nor raised it to 135 beats per minute. It's annoying for me because doctors expect both Ami and Nor to be well tolerated. So when I say they give me...
  12. Arnie Pye

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    I wonder... Was the intention in publishing this article today to try and create a furore amongst patients to see if they will take the bait and make threatening remarks on some public forum? It does seem to be deliberately provocative. But if that was the intention it needed to be published...
  13. Arnie Pye

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    "ME" becomes "chronic fatigue syndrome" becomes "chronic fatigue". How to minimise and dismiss a medical condition in two short paragraphs.
  14. Arnie Pye

    Chills

    Could you have developed hypothyroidism? Feeling the cold is a really common symptom in the condition. If you already know you are hypothyroid and are treated for it perhaps you need a dose increase.
  15. Arnie Pye

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    One thing I realised a few years ago that is part of the whole "We won't believe you or test you or examine you" process is that doctors have told me many times over the years that they would do "full bloods", which (in my youth) always made me think that they would be thorough. (And I'm sure...
  16. Arnie Pye

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    The problem with concepts such as "Medically Not Yet Explained" symptoms is that having been diagnosed with MUS or MNYES the patient will soon realise that no doctor will ever examine them again or suggest testing for anything (because testing tells patients they are really ill and they mustn't...
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