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I sent email to the author & cc:ed the producer (if you click on the byline you can find their email addresses) asking for a headline change. FYI, this article seems to be the same one that is on the WGBH website here...

Bumping this up since the call is next week. https://www.cdc.gov/me-cfs/programs/meetings.html PS. No, I'm not super organized, I just happened to read about the call when looking at the CDC website so I went looking for this thread! ;)

I know QEEG testing has been around for a while. But I don't know how well accepted it is by doctors. Is QEEG testing useful in a clinical setting for any other illness? I'm not talking about ME, but for any other illness -- brain injury, depression, whatever. Or is QEEG still a mostly...

Article about this study by Science Daily - https://www.sciencedaily.com/releases/2019/09/190909081756.htm Edited to add a quote from the article

Thanks for posting. I'm hoping this discovery (and future studies) will eventually be helpful for the subset of ME/cfs patients who have POTS, NMH or some other sort of Orthostatic Intolerance.

At the symposium today speaker Ron Tompkins announced a new website, The Harvard ME/CFS Collaboration: http://endmecfs.mgh.harvard.edu/

Hi @Grigor :emoji_wave: Thanks for the translated quote - just retweeted it! :emoji_relaxed:

I forgot to mention one thing. From the last slide of the presentation: * Dr. Roberds will participate in the next NIH ME/CFS Advocacy call on October 17th to further discuss this report I generally don't participate in any of these live calls or presentations (just too hard for me to...

Some screen shots from the video (not the whole thing). I think these are in order. (crosses fingers)

I have a few comments after watching the video. The ME/CFS presentation starts at about minute 56. The talk ends at about 1:24, followed by a question/answer period until about 1:41. The intro slides (see screen shots in the next post) seemed pretty good. The only objection I had about the...

The link to the recorded video is the same as the live videocast link that was listed in a post made by @Tom Kindlon above. But I thought I'd repost it here - https://videocast.nih.gov/summary.asp?Live=33390&bhcp=1 The ME/CFS part starts at about minute 56. I'm going to watch it now. I'm...

Yes, sorry for any confusion! I thought you already knew where to find the full instructions or I would have pointed out where they were. I know it was still on the CDC website as of May 12th this year. I checked because I used that exact phrase on a poster for our local May 12th Millions...

For what it's worth, I got the email with the addresses a day or two after the postcards arrived.

Is that the same Pendegrast? It shows T as the initial. I searched for Robert Pendegrast and found these links which match the location cited above (August, GA). Middle name Allison. https://www.augustahealth.org/find-a-doctor/find-a-doctor?id=293...

Here's a short good news / bad news update. The good news is that there was a huge response for this project! ME Action got requests for more than 3500 postcards. :thumbup: The bad news is that they have had to put the project on hold for a bit so they can catch up. But they're going to...

This is kind of rambling, so I don't know how helpful it is, but thought I'd add my two cents. Maybe it partly depends on how sick the patient is? When I was very sick, any exertion was unpleasant and the post-exertion symptoms were even worse. Now that I'm more moderate, if I have rested for...

I put my first batch of five postcards in the mail today! https://twitter.com/ahimsa_pdx/status/1164568277147742210

FYI, for folks who are deaf or hard of hearing there are no subtitles and no signed interpreters. Probably best to wait for a transcript.

I see a couple of comments in the chat window but, sadly, "je ne parle pas francais" ;)

I saw this tweet last night that said the livestream starts a half hour early. https://twitter.com/wigglethemouse/status/1164384541311524864