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  1. Peter T

    Reading words incorrectly

    In terms of specific words again the problems could relate to eyesight, visual processing or at a language level of word recognition. @DokaGirl, are you aware of having a preferred reading strategy, some people tend to read by converting the written form mentally into sounds, so getting to...
  2. Peter T

    Reading words incorrectly

    There are a number of possible levels of deficit that can cause problems reading. It could be due to problems in visual perception, be it problems with the eye itself or the brain's processing of visual signals. If this were the case any problems would effect all vision, not just reading. So...
  3. Peter T

    Why is it so often said that almost nothing is known about ME/CFS?

    I do feel that the BPS cult, intentionally or otherwise, takes advantage of and deliberately exaggerates the gaps in our understanding of ME to push their preferred psychological interpretations and behavioural interventions. Having said that they make no attempt to evaluate their own theories...
  4. Peter T

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Presumably the only potentially hopeful sign was that Larun felt there was a need to leak to the Reuter's journalist that Cochrane were considering withdrawing in some fashion this review, and to brief against them with the false 'bullying patients' narrative. Presumably Larun and the BPS crew...
  5. Peter T

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Cochrane said in October "The review author team have advised us that a resubmission is imminent. A decision on the status of this review will be made once this resubmission has been through editorial process, which we anticipate will be towards the end of November 2018." This is potentially...
  6. Peter T

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    On the Cochrane site there seems to have been no change in the current 'everything is pending' situation. The undated 'Notes' attached to the exercise review itself about its status under 'Information' (see bottom of page...
  7. Peter T

    New Website on Severe ME

    https://alifehidden.com/
  8. Peter T

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    I thought it might be useful to include a link here to our original thread on the withdrawal, that was not, of the Cochrane GET review, which is now up to 38 pages of posts: https://www.s4me.info/threads/cochrane-me-cfs-get-review-temporarily-withdrawn.6225/ I personally feel that Caroline's...
  9. Peter T

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    Caroline Struthers' letter to Cochrane Governing Board I noticed on Anil about ME's Facebook page the following link: https://healthycontrolblog.wordpress.com/2018/11/29/my-complaint-to-the-cochrane-governing-board-about-the-cochrane-review-of-exercise-for-chronic-fatigue-syndrome/ Caroline...
  10. Peter T

    Campaign week from the Norwegian ME Association to increase knowledge

    Beste ønsker Norge (Google Translate for 'Best wishes Norway')
  11. Peter T

    Advertising of alternative therapies

    It sounds like you have done the right thing @Trish, but also perhaps right not to push it further until at least you have received a reply from the agency. If the advert itself does not contravene advertising standards, the main problem here is that the agency chose to effectively endorse this...
  12. Peter T

    Review: Postural orthostatic tachycardia syndrome: clinical presentation, aetiology and management, 2018, Fedorowski

    I have so far just read through the review once and may be unfair in my comments but two things struck me in an otherwise clear and appearantly well argued review: 1. In relation to 'CFS' the authors say: however given the limited resources for diagnosis, mentioned by the authors, and the...
  13. Peter T

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    For those of us with Tory MPs might the political context of the PACE trial be a helpful angle? The PACE trial uniquely was funded in part by the DWP (Department of Work & Pensions) but also in part by the Department of Health, both government departments, as well as a more usual research...
  14. Peter T

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    Rereading the above, I wondered if I was in fact saying there were three main points, the third being that ME is a 'real' biomedical disorder. However I suspect by explicitly raising the psychiatric versus biomedical debate we play into the hands of the BPS crew who can then muddy the water by...
  15. Peter T

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    I agree there are many issues that need addressing, but given our current state of knowledge I would argue that the two most important are the prevention of harm by forcing NICE to drop GET and the PACE corruption of CBT and the need for increased funding for biomedical research. The need for...
  16. Peter T

    Carol Monaghan has applied for a debate in UK House of Commons main chamber

    Excellent news. Another letter to my MP to add to the list.
  17. Peter T

    Predictors of Persistent Medically Unexplained Physical Symptoms: Findings From a General Population Study, 2018, Van Eck Van Der Sluijs et al

    The study reports "In the adult general population, MUS were persistent in over one third of the subjects with MUS at baseline. Persistency was significantly predicted by parental psychopathology, number of comorbid chronic medical disorders, and physical functioning." (Sorry, I too could not...
  18. Peter T

    "Vitamin D Deficiency Elevates Colorectal Cancer Risk" (includes discussion of inflammatory disease and gut microbiome)

    @Trish point taken. I had wondered also whether this was getting dangerously near suggesting we share information that could be mistakenly taken as medical advice. I had been grappling personally with how I could compensate for my memory problems by externally storing and organising...
  19. Peter T

    "Vitamin D Deficiency Elevates Colorectal Cancer Risk" (includes discussion of inflammatory disease and gut microbiome)

    When I took vitamin D regularly it was as part of a range of supplements, so though at the time I believed they were helpful, I could not say which individually were responsible for any benefit. When I took a lot of supplements some years ago it was under a nutritionalist and though they seemed...
  20. Peter T

    2016 Psychology Today article discusses overcoming CFS through dealing with stressful situations from past.

    The conversion theory of physical symptoms is obviously a strongly held belief by many clinicians, psychologists and psychiatrists, but has anyone ever demonstrated scientifically that it ever occurs? Also its advocates don't seem to come up with a predictive theory as to why it would result in...
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