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It does seem relatively common in chat rooms for people with ME to report a perceived link between dental issues and their ME. However these are self selected cohorts so may in no way be representative. Also if there is any association it is hard to know whether there is any direct causation and...

It is surprising the potentially lifelong damage that misinformation given to parents of a young child can have. Many years ago I was assessing the communication needs of a group of adults with physical disability, whose long established day centre was losing its funding for their places. I was...

@Michiel Tack, thank you yet another interesting read. The series as a whole will be a useful resource.

If you could demonstrate, all other things being equal, that 75% of children bitten by a dog later go on to develop IBS but never develop non epileptic seizures and 65% kicked by a horse go on the develop non epileptic seizures but never IBS then I would consider there is a strong argument for...

Until they develop a model that predicts in advance who will subsequently develop which symptoms, these results mean nothing.

I feel at some point we need to address head on the issues that result in doctors struggling to understand/believe our experience/symptoms. It may help that some doctors can report on the issue from both sides, but as we have seen before that alone is not enough. This is something I have been...

it might be this The disabled doctors not believed by their colleagues https://www.bbc.co.uk/news/disability-56244376

Don’t forget the same people have been grooming, oops sorry supporting, these children for at least a year, so it is quite possible that some of these words were used by participants.

Yet another study involving children not recovered after the intervention by the Bath CFS/MES specialist service. Does this proliferation of studies cast doubt on the claim that 85% of their patients are ‘cured’ in the lay understanding of the word? How many of these participants could have...

The only way to clarify these issues would be to experimentally introduce the oils in an effort to induce seizures whilst comparing this to a control group scrupulously avoiding the oils. However would this be ethical?

Is this a case of SAPS - silly acronym proliferation syndrome?

Coincidently the British MEA very recently published an item about a young woman who had had ME as a child but has recovered. Her parents are still fundraising for ME, including donating a percentage of profit from their aromatherapy business. Whilst it is good to hear positive stories and...

I think we still need a good basic ‘natural history’ or description of ME: That is what symptoms are present, but also are there any groupings or hierarchies of symptoms. This hopefully will lead to better descriptions of PEM, increased fatiguability, orthostatic intolerance, etc. What co...

It is possible that the right level of pacing sets up the right conditions for some people with ME to experience spontaneous improvement. We know that activity programmes of themselves do not cause improvement, but there is the possibility of the right activity management facilitating some...

Alternatively ‘Lower expectations and greater anxiety regarding exercise may reflect’ a realistic interpretation of what they are able to do without triggering PEM or a reasonable fear of exertion worsening their health. The conclusion appears to be yet more failing to justify the leap from...

Thank, I am struggling to read it at present, but it is useful to have access to it here in this context.

It looks like David Mark’s post is substantially the press release on Dr Myhill’s website which also contains her archive of materials relating to the whole progress of her complaint to the GMC (see https://www.drmyhill.co.uk/wiki/My_Complaint_to_the_GMC_about_the_PACE_authors ) I have not yet...

[Added - I don’t know how the following relates to putting the PACE data on the CSDR web portal ... ... ] My understanding is that Queen Mary’s is now refusing to release any further PACE data to FOI requests on the grounds that Prof Peter White’s early retirement means that the cost of...

I had reservations about some of Dr Myhill’s grounds for the original complaint to the GMC, but do think that it is worrying that the GMC should be able to reject out of hand undertaking any investigation of the complaint and then refuse to say what their decision to do this was based on for...

And if these theorists have their way, such patients will be denied any biomedical assessment and no relevant biomedical research will be allowed, ensuring the statement becomes “will never be found”.