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  1. ME/CFS Science Blog

    Which exercise & behavioural interventions show most promise for treating fatigue in multiple sclerosis? A network meta-analysis, 2021, Harrison et al

    I'm confused isn't it simply the same study? EDIT: ah ok, now I see it. The first one was published in Behaviour Research and Therapy and is called "Which behavioural and exercise interventions targeting fatigue show the most promise in multiple sclerosis? A systematic review with narrative...
  2. ME/CFS Science Blog

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Good news. It seems that the ME Action press conference was a success.
  3. ME/CFS Science Blog

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    The fight of parents of autistic children against the myth of the refrigerator mother and psychogenic causation has quite a lot of similarities to the work ME/CFS advocates today. An interesting read is this paper by Bernard Rimland: “Psychogenesis Versus Biogenesis: The Issues and the...
  4. ME/CFS Science Blog

    Endorse the European ME Coalition's idea at The [2021] Conference on the Future of Europe

    It might look like your language is already selected but you have to press it again to go to the next screen. Maybe that is the issue.
  5. ME/CFS Science Blog

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Currently reading about the myth of the schizophrenic mother, and thought this was an interesting read: Mistreatment of Patients' Families by Psychiatrists WILLIAM S. APPLETON Abstract Many schools of psychiatric thought implicate the patient's family in aggravating and even generating his...
  6. ME/CFS Science Blog

    Effectiveness of training in guideline-oriented BPS management of low-back pain in occupational health services, 2021, Ryynänen et al

    Effectiveness of training in guideline-oriented biopsychosocial management of low-back pain in occupational health services – a cluster randomized controlled trial by Ryynänen et al. Objective This study aimed to investigate the effectiveness of brief training in the guideline-oriented...
  7. ME/CFS Science Blog

    UK: Priority Setting Partnership for ME/CFS

    The surveys says: Does that mean people outside the UK cannot participate?
  8. ME/CFS Science Blog

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    The reasoning: "we can see what the trials cannot" doesn't make much sense to me. If doctors can see with their own eyes that the treatment works, it must be a pretty strong and obvious effect because there are so many confounding factors (age, sex, illness severity etc.) that make it...
  9. ME/CFS Science Blog

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    This one by Peter Rowe required patients to have neurally mediated hypotension. It concluded: "In our study of adults with CFS, fludrocortisone as monotherapy for NMH was no more efficacious than placebo for amelioration of symptoms." Fludrocortisone acetate to treat neurally mediated...
  10. ME/CFS Science Blog

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    Some of the treatments listed have been trialled in ME/CFS, often with negative results (caveat: lack of statistical power might also be an explanation for this). In our study of adults with CFS, fludrocortisone as monotherapy for NMH was no more efficacious than placebo for amelioration of...
  11. ME/CFS Science Blog

    Digital ME conference in Stryn, Norway April 13-14th 2021

    Thanks for the summary @Kalliope
  12. ME/CFS Science Blog

    Exploring anhedonia in adolescents with Chronic Fatigue Syndrome (CFS): A mixed-methods study, 2021, Smith, Crawley, Loades et al

    From the quotes, it's quite clear that the participants' boredom, lack of interest are the result of being severely fatigued/sick. They don't enjoy or look forward to doing things because they are too ill, or the activities they still can do are so limited that it leads to boredom etc. I don't...
  13. ME/CFS Science Blog

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Yes throughout the paper, the authors seem to favour I-CBT because that's the version they made and it's shorter and cheaper and at follow-up it didn't perform much worse than traditional CBT. The problem, however, is that the I-CBT intervention didn't significantly outperform the waiting list...
  14. ME/CFS Science Blog

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    I think the key word here is "waiting list control group". Patients who received treatment I-CBT were compared to patients who also wanted I-CBT but were put on a waitlist for several weeks before they could try it. Suppose a manufacturer wants to test the satisfaction with a new laptop...
  15. ME/CFS Science Blog

    “She used to be Tigger and then she was Eeyore”: young people, CFS/ME, exploring predictors of recovery, 2021, Clery, Crawley et al

    It seems like the text of a poster presentation was published? It reads: That would really surprise me. A holistic approach, taking social factors into account and a broad definition of recovery seem more like the things the researchers want the patients to say. I would guess that patients...
  16. ME/CFS Science Blog

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Thanks, just one clarification: the psychosomatic theories of diabetes were rather marginal and noninfluential as far as we can tell. We provide an overview of psychosomatic explanations and go look for them, because that's what our series of articles focuses on, but this doesn't always mean...
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