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It really wasn't. The raw incidence rate ratio (% more women with IPV that develop CFS) was 70% more, compared to 95% more for FM. That's not what I'd call 'slight'. However, due to the lower numbers, the 95% confidence bound of CFS increase was almost zero. (1%), whereas for FM it's 54%. So...

https://bmjpaedsopen.bmj.com/content/3/1/e000525.full Full text is open. I find it depressing that 'return to pre-morbid condition' is not strongly endorsed. This is pretty damn clear. Yes, there are problems, and athletes returning to 'normal' person activity might not be quite recovered...

Technically, the most recent extension was only 3 months. And in principle, the new guidance draft could be great and available in summer. But yes. However. There is a considerably greater body of evidence now, than there was when the last decision (to update the guidance) was made. So that's...

https://www.nice.org.uk/guidance/indevelopment/gid-ng10091

Merged thread https://www.ncbi.nlm.nih.gov/pubmed/31788347 A paper on on if removing 'substantial reduction' from the diagnostic criterai is useful. Does anyone find 'substantial reduction' stigmatising? Even if it did originate in psychological diagnosis. (?) As the conclusion states - with...

I note a point I haven't often seen. It is not needed at all to go to third parties to rubbish the claims of improvement. Thread I created in another place. CBT/GET - in their own words. "Table 6 ‘Table 6 Change in activities and health across CFS/ME specialist services at 2- to 5-year...

It is not needed to go to third parties analysis to find the glaring errors. Quoting something I wrote for other purposes. The PACE trial was the largest trial into CBT/GET/APT as a proposed treatment for CFS/ME. The authors of this trial later released Adaptive pacing, cognitive behaviour...

I do wish that the simple research would be done. Find people who say they have EHS. Place a mechanical timeclock in a box to connect and disconnect a battery powered device over the course of a few hours. (Phone set to download/upload a big file). After twenty fifteen minute periods when it may...

I do wish people would use terms less casually. I note for example NICE used 'abstract review' in one round of summarising the field, and using CFS/ME in this manner is reprehensible in abstract if they are excluded. It annoyed me enough in the end I wrote the corresponding author asking:

Modern antihistamines have limited side-effects, and can in principle be taken in higher than nominal doses. I have found Loratadine (available in 240 packs OTC on amazon) at around 30mg/day very useful. It has been used theraputically at these sorts of dosages -...

I emaied the corresponding author: I had not seen the paper mentioned immediatey above before doing so. Reference 19 was a paper that dealt with overtraining and was immediatey after the comment on CFS.

I note that you can't reliably say that 'my CFS was not due to a virus' - as some of the viruses loosely implicated are basically nonsymptomatic at time of initial infection for a good fraction of people. That's not to say that there are no non-viral causes, just that asymptomatic virus causing...

It's worth getting a machine and checking your blood sugar when you have a crash like this. The testers are inexpensive if you do not need ongoing testing, just to do it for a few days/occasions. I was able to rule out any issues with blood sugar - pretty much. (alas). And yet, eating makes me...

I think it is useful to note the list of diagnostic symptoms (here copy/pasted from CG53). difficulty with sleeping, such as insomnia, hypersomnia, unrefreshing sleep, a disturbed sleep–wake cycle muscle and/or joint pain that is multi-site and without evidence of inflammation headaches...

They do publish failed replication studies, not as often as you might like - but you can't make statistics from single events. I would truly like to know the editorial process and reviewers on this, and hope no part of the decision was to bash a biomedical approach.

If I am reading the new paper correctly, the thing they claim to be measuring is almost unmeasurable given variation in sample times as may be found by patients samples at poorly controlled temperatures being shipped to them. In addition, there are severe questions about what they are in fact...

Has anyone done a breakdown of funding between the two camps? Ideally I'd like something for UK, and global: BPS research $ per year, biomedical $ per year. Clearly there would be some room for argument - for example a biomarker paper that mentions CBT as useful. I feel a useful argument to...