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Having problems with the online donation as I am uk and I cannot find where to put Suffolk in! All the options are USA . Maybe a Noscript issue for me? Sorted and donated .......doh.....!

I know Panorama has still an interest and I have had conversations with one of the producers in the last year/

I absolutely agree that NICE is not to be trusted, nor the RCP the Guideline developers ..... operating behind closed doors....and NICE is being 'superceded" by NHS England and NHS Improvements it would appear. The whole process is a set up! So I will make a first Suggestion. How about...

Jerome mostly covers other issues like diet ( with Patick Holford) and adverse reactions to medication, particularly the statins fiasco. He dips into ME and CFS, as and when. He knows Jo Edwards quite well I believe. He's attended Invest in ME conferences. He is quite approachable, so when asked...

http://healthinsightuk.org/2019/04/22/the-claim-that-the-cure-for-the-crippling-fatigue-of-mecfs-was-to-change-your-mind-always-seemed-bizarre-now-it-really-is-on-the-way-out/ So glad he has taken up the mantle and run with it!

https://nspccro.nihr.ac.uk/ Who are the Research Office? We are the Norfolk and Suffolk Primary and Community Care Research Office. We work with the NHS, academics, health and social care practitioners and commissioners, patients and the public to develop, manage and support the delivery of...

Barbieloo @BarbR666 What would you do in my shoes? pic.twitter.com/z1yPHsNoQU

A while back, NelliePLedge said, "Don’t want to be negative about your idea @Suffolkres as I know you’re battling to come up with something workable that keeps people away from GET........." Well by stealth of hand, Waveney CCG and Norfolk CCGS (5 in all), have shelved 10 years of co prodiction...

I can honestly say, Jerome is both really interested and truely interdependent thinking! He first wrote on the ME situation in the late 1990's early 2000, Wessley and Hooper! 'For ME sufferers, the bitter feud between the scientists as to whether it is a genuine physical complaint, or more a...

David T and Jerome combined would be the 'Dream Team'!

Brilliant. Jerome got a result!

Stage 1 and Stage 2 with NICE, then the Ombudsman next if we were not happy and not accepting NICE responses.

LOcalME have drafted a stage 3 complaint to the Ombudsman - not yet sent ( my fault...)

It has repeatedly said that many with ME are 'atopic', have allergies and intolerances. I think the figure was about 60%. It applies in my family, husband/son.

Also work was recently commissioned by Waveney CCG via Steven Wilkinson Dr Steven Wilkinson The Norfolk and Suffolk Primary and Community Care Research Office "Agenda Item: 17Fran O’Driscoll, Deputy Director Commissioning NHSGYWCCGJSCC 19th February 2019 Page 3 of 3 Dr Wilkinson has also...

25% Group Advocate could do this...?

Ethical approval was secured for the Biobank research which served the severely affected in Norfolk and Suffolk, originally in 2011. At that time and until 2018, none of the researchers were involved in the service delivery.

Biobank staff should tender for this! Eliana?

I promise I will too but nearer the end so I can do him justice!

I know, but his appointment is for the wider more common good. Know anyone who wants this job?!!