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  1. Inara

    New German guideline for ME published today

    I won't make a statement regarding fatigatio; last time someone critisized them, they threatened to sew them. No comment on that. Shame! I'm disgusted. And what's that last part about not putting them in one pot with others - WTF?! Why, oh why does this organisation have members? Oh sorry...
  2. Inara

    New German guideline for ME published today

    Maybe someday they'll be surprised!
  3. Inara

    New German guideline for ME published today

    It is horrendous, unbearable! :mad: oh, I am so angry, I would like to....:emoji_right_facing_fist:
  4. Inara

    Guideline "Tiredness" by DEGAM

    Can you reference to what they said? Seems the connections to the BPS group is correct, at last. Edit: I see you did on the other thread.
  5. Inara

    Guideline "Tiredness" by DEGAM

    Thank you, @Joh!
  6. Inara

    Guideline "Tiredness" by DEGAM

    Thanks @Philipp, that is very constructive! I seriously do consider to contact Gysi's office, BUT I am not sure whether he is the right person (he and his colleagues are into the (medical) criminal law...) and I am certain he does take a lot more than 300€ or so per hour. Hm... I came across...
  7. Inara

    Proposed Letter to NICE

    Wow :jawdrop: I don't know the NICE system and their regulatories. But it could be a direction, to use their rules "against them".
  8. Inara

    Proposed Letter to NICE

    Honestly, doesn't sound very promising. Actually they're saying "We do as we want...ahem...as the rules say". Sad. :( Nonetheless, million thanks to the authors of the letter and for being active!
  9. Inara

    Does anybody know this?

    Thank you, @jeckylberry, for describing your experience! First, I am relieved others know this, too. But then, what's disappointing, you don't know what it is, right? (Except @Wonko?) I don't have too much hopes in neurologists or neurological clinics; or doctors in general. :D but I'll try.
  10. Inara

    Simon Wessely Research & Related Quotes

    Here, https://www.s4me.info/threads/entire-issue-of-post-graduate-medical-journal-11-1978-devoted-to-me.2158/#post-39413 @Daisymay linked to a homepage by Margeret Williams, http://www.margaretwilliams.me One can find some documents about things Mr. Wesseley said, too. E.g. "Wesseley's quote...
  11. Inara

    "Impostors" in Psychiatry

    Why spend money if you can create certificates all on your own?
  12. Inara

    "Impostors" in Psychiatry

    That story is just hilarious! :laugh: the question obviously is who is the "sick" one: the psychiatrist or his "patient"? Reminds me of Freud, Jung, ... In Germany it's so easy to get psychopharmaceuticals, i.e. no false pretenses needed. :D
  13. Inara

    "Impostors" in Psychiatry

    Yeah :D (Well, to be fair, there are certain interesting parts of psychology...but psychiatry is not.)
  14. Inara

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    It makes me a little bit sad...seems all knowledge from the past is ignored and the wheel is re-invented again and again. This leads to nowhere. I also had this feeling when reading "Osler's Web". Maybe I'm too pessimistic here?
  15. Inara

    "Impostors" in Psychiatry

    Well, officially you have to make certain certificates, e.g. study psychology or medicine (and then psychiatry). But those examples show you needn't study at all. :) You just have to learn their way of speaking.
  16. Inara

    "Impostors" in Psychiatry

    No, this is not about psychiatrists as impostors - although it could be :D - but about people who pretended to have a degree in psychiatry and got - partly central - positions in a clinic. A TV part (ZDF) about Alexandra Beek who pretended to have a PhD and was a psychiatrist two years in...
  17. Inara

    Empty Sella Syndrome

    You know, that is a brilliant idea.
  18. Inara

    Low temperature

    Good luck with your GP, @Wonko. You know more now. Personally I think that's valuable and is a good foundation for success. Best wishes!
  19. Inara

    Low temperature

    I would take "active folic acid" - is that folate? Ohhhh :bear: I take MTHF. Folate is one suggestion by the Charité ("things you can try"). My feeling was that the CRP wasn't too low (but not too high either...well). Probably it's not important?
  20. Inara

    Low temperature

    I'd say a TSH of 3 is a bit too high. In Germany, the limits were changed some years ago. Now everything > 2.5 microU/ml is deemed as hypothyroidism, if I remember correctly. I also found 3,1 as upper limit. But to me, ft3 and ft4 look decent. Edit: You could think about substituting folate...
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