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One of the first MUS Clinics?!!!!!!!!

Does anyone know how many psychologists are in the list of names of people involved?

This doctor has a fairly active Facebook Group, could message her, via this: Dr Hng's ME/CFS Friends The book is OK. It is an easy read and does include relevant info/descriptions. It did annoy my daughter, due to refs to being ultra busy, burnout style, but keeping going as long as she could.....

I suspect that some of these boards, the CDC and NICE are reluctant to publicise, with a loud fanfare, that these treatments are no longer recommended. due to potential harms as it could expose them to lawsuits and other comeback.

These comments are from 1999. Some clinicians and researchers have changed their views as they have seen more PwME and have kept up with Biomedical research. The BPS brigade are stuck in the last decade in their views.

Thanks for picking this up @Sly Saint. So why is care for ME under the services for mental health and learning disability? Leeds and York Partnership NHS Foundation Trust - Home https://www.leedsandyorkpft.nhs.uk/ Leeds and York Partnership NHS Foundation Trust provides mental health and...

Could the CQC (Care Quality Commission) have a role here?

Wonder what happened to all the beds used in the Olympic Opening ceremony?

My daughter has in the last couple of weeks had twins round. She has not seen them for a few years, but they were lovely and understanding and are planning to see each other at least monthly. It was a real treat to see her so happy after seeing her peers, as it can so often be a two-edged sword

@Amw66 Roughly how much does Nisai cost? Is your daughter doing GCSEs, or whatever the Scottish equivalent would be?

Please also bear with us when are comments are critical and try not to take them personally. 'We' may well be speaking in grief, frustration and pain at the inexplicable hostility that the psychs have shown, unrelentingly for decades and the dreadful treatment, disbelief and judgement showered...

@Gary Burgess My daughter is 24 next month and has ONLY been ill for 7 and a half years. Fortunately she escaped the threat of being taken into care because she could not get into school as in 2010, school leaving age was 16. Youngsters are still in this situation and being sectioned to undergo...

Gary you did an amazing job and got the message re the severity and debility of the illness over brilliantly. Congrats on getting the one hour slot and some great guests. I think Julia N has done really important biomedical research and stuck with the ME community valiantly. There are many...

When will they realise that these people WANT to work, be in education or training and want to have normal lives.

Jane Colby at TYMES Trust would probably know what, if anything is ongoing

Virology Blog was down briefly a few weeks ago. Do we suspect Trump, Putin or the BPS Brigade?

I have enormous respect for Julia Newton. She is one of the few (?only) people who has managed to get any research grants for biomedical research into ME. She has worked strenuously in this field for years despite the stigma she gets from others who work in the fatigue and probably other...

Are you a member of the FB group Mums of kids with ME. There are lots of people with experience of education problems etc. Also, some of them may have PR contacts. What about the Scottish MPs, including Carol Monaghan? There is also the list of MPs who went to the Unrest viewing at Speaker's...

I think it will be applied to all regional ME groups FB or who meet up in person. One group who recently applied to join were told they could not because they were regional. It seems that N Ireland and Wales are the exceptions. It is only reps from stakeholder groups who can attend the scoping...

Ah OK a little bit out of range for most Europeans with ME. Thanks for info