Search results

I vaguely remember Ellen Goudsmit saying what patient groups were advising was being or had been mischaracterised. She was the editor of the ME Action magazine/newsletter in late 80s or early 90s, possibly under a pseudonym.

Though conversely, some people in Ireland might say that some doctors are in a rush to give a diagnosis of CFS to those who believe they (parents, etc.) have been damaged by the (HPV) vaccine.

There are not easy targets with this illness yet as the pathophysiology is not understood. So the drug companies are reluctant to invest at this time. I think whatever the true prevalence is, the illness is significant enough that there is a big drug market there. We just need to seek to...

I see one of the studies they used was Reeves et al 2007. This used the so-called empiric criteria for CFS (Reeves et al, 2005), which are really rubbish. It found a prevalence of 2.54%. Edited to add: The Reeves et al 2005 criteria are an operationalisation of the Reeves et al 2003 criteria...

Free fulltext: https://ecronicon.com/ecne/a-critical-review-to-investigate-chronic-fatigue-syndrome-as-sleep-disorder.php

Free full text: https://purehost.bath.ac.uk/ws/portalfiles/portal/203914742/SLAM_Paper_7_SSAS_SF36_Psychometric_Properties_BCP_R2_Complete.pdf

Merged thread For what it is worth: https://klinghardtinstitute.com/teachings/slides-from-me-cfs-event-15th-feb-2020 Slides from ME/CFS event 15th Feb 2020 Events, Teachings Dr. Dietrich Klinghardt: What is ME? What are the leading theories? Diagnostic tools – View PDF...

I've heard of postinfectious (fatigue) syndromes after a lot of infectious conditions, but I don't recall hearing of Legionnaires' disease. Unfortunately this article does not give much information on symptoms and impairments now, but perhaps more information will come out in the coming days...

When I got some analysis of my cortisol/cortisone levels done, it involved a collection of urine for 24 hours. A bit easier for men than women. Thankfully I was housebound, so it wasn't a huge inconvenience. One time my mother had to go in for an extra container due to the volume I had excreted.

Source: North West University Date: July 2019, Online February 14, 2020 URL: https://repository.nwu.ac.za/handle/10394/34126 https://repository.nwu.ac.za/bitstream/handle/10394/34126/Du%20Plessis%20L%20%2021648859.pdf

Chronic fatigue syndrome is mentioned as one of the keywords so I thought I would post it in this forum https://www.sciencedirect.com/science/article/abs/pii/S0149763419309868

Looks like CFS may have been looked at in this. https://www.sciencedirect.com/science/article/abs/pii/S1876382019314076 View full text © 2020 Published by Elsevier GmbH.

https://www.sciencedirect.com/science/article/abs/pii/S0022399919309766

This is a piece on a 2005 paper

I think anyone who has had ME/CFS is playing with fire if they take on a job that has 26 hour shifts.

Free full text: https://www.cfp.ca/content/66/2/126 Compounded S.K. Hughes Canadian Family Physician February 2020, 66 (2) 126;

Free full text: https://www.nature.com/articles/s41398-020-0741-x

This one? https://onlinelibrary.wiley.com/doi/full/10.1111/j.1475-097X.2008.00822.x

The abstract doesn't mention the hypocapnia (reduction in carbon dioxide) that was found: