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No mention of one or two physicians so they presumably have been picked.

I remember around a decade ago, Dr Ros Vallings, giving the impression to people in New Zealand that Japan was spending something like $50 million on CFS research, and that the country (New Zealand) shouldn't focus too much on raising money for research and concentrate instead on other things...

I remember seeing one or more CFS studies on children and adults from Japan, which suggested the prevalence there was higher than most of the figures that had come from other countries. It seems plausible to me that CFS might be more prevalent, where people have less chance to rest when they...

It’s over 8000 adults use the services each year according to this paper: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3665909/ so many more would use them during their illness. And it’s questionable to use the 125,000 and 250,000 figures as not everyone is diagnosed. I am not convinced that...

Yes, I agree. I think that it would be hard for people such as Peter White and Trudie Chalder/Simon Wessely to set up bases like they did in Barts and King's in a health system where there are co-pays where consumers pay some or all of the costs. Too many patients would have voted with their...

By the way, ME/CFS advocates made one or more submissions to have NICE guidelines for ME/CFS around 2004. For example, a Welsh group put in an application. I always thought it wasn’t a good idea as NICE is partly a rationing body and it should have been clear it would recommend against lots of...

This came up on a Google Scholar search. I'm suspicious of it but haven't read it. It's only a blog, not a published paper. Just in case is of interest to somebody.

A lot of the published research on genetics uses the CDC’s so-called “empiric” criteria (Reeves et al. , 2005) which are really rubbish and for example include a lot of people with major depressive disorder and not CFS.

With regard to depression, I think there are conflicting findings from prospective studies. I also think a big issue with prospective studies in the field is that it often takes a long time to get diagnosed. So it is claimed somebody had depression before they got ME or a CFS when really they...

Just to be rigourous: the Cochrane review didn't report objective outcomes; this wording gives the impression it did.

Yes this is pretty shocking.

There is pretty much no way these figures are for metres. I presume instead they are for feet. The equivalent numbers in metres are: 407 and 401. Comment: this is not a criticism of the Vink paper

Yes, indeed. If Laurun et al had reported on objective outcome measures this would have shown up in the Cochrane review.

99% sure it isn’t. That’s an English rather than Scottish accent. Also I remember it being released before, I think last May.

Yes, the paper itself is not clear on this. But it is not impossible to use both bimodal scoring and Likert scoring for the Chalder fatigue scale in the same paper. For example, initially with the PACE Trial protocol, the primary outcome measure used bimodal scoring, but then there was a...

I haven’t followed this thread. But I just thought I would point out that a lot of the focus of the judicial review of the last NICE guidelines was on the make-up of the committee. I wonder whether anything can be used or learnt from that.

Sometimes people talk as if it is some sort of scandal that a lot of the money that has been raised for research has been raised privately. But there are lots of conditions where a lot is raised privately and with some conditions the amount raised privately is multiples of what is raised...