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Morning! Thanks - but that still needs patients to notice that not all fields are marked as 'required' and implies that you need to give your postal code (and by implication, also your street address). I think it would be better to point out which fields are required and to make clear what...

Oh! Thanks, Andy. I've amended my earlier posts. @JenB, @JaimeS - what about making this more clear on the petition in case it scares other people off? If you can't get rid of the fields that aren't required, what about editing the instructions so that they read: Anyone can sign – patient...

Privacy alert! So if I put my name to this, my actual physical postal address will be made public, Edit: Apparently you don't need to give all this info - only your name and country. Panic over! Sorry! Let's pile on and sign! :)

@Andy, would you like to add something to your title to show that this is a worldwide call for signatures, not just for US people? :) And that there's a May 16 deadline?

'Fair use' has a very specific meaning under copyright law and I'm not sure that the proposed use would be covered. I'm no lawyer, though.

@Graham, drawing your attention to the above.

Copyright pertains regardless of whether anyone makes money off it, doesn't it?

JenB is Jen Brea, @Graham. :)

You're right - I edited my title. :)

You'll need to unmute the audio: Donation page here: Please retweet: And share on FB - except I can't seem to provide a link without just inserting the video here. :(

This is a mass-biosampling of US citizens with any condition at all. There's no reason for them to do any protocol to a specific disease.

According to Cort, 'Data from the project will, of course, be anonymized'. Although it appears that patients can get their data, I'd hope that they could also refuse it if they didn't want to know it - I don't know the US situation and whether choosing not to know would protect you from being...

Very interesting thing on Health Rising: According to Cort, 'A top Harvard neurologist has suggested that the ME/CFS community look into participating in one of most ambitious medical projects ever attempted. If you live in the United States and are over 18, you are invited.' Looks like a big...

Really glad you've found something that gives you some improvement, @Woolie. :thumbup:

Three minutes.

Just over an hour away now.

It's not forum members that we have to worry about - it's having those words taken out of context by BPS proponents that's the concern. It's a tactic we've already seen used in the UK and we don't have the platform to defend against it. But I think we also have a responsibility to recognise...

https://twitter.com/bbc5live/status/983384389756256257 Congratulations, @Gary Burgess! :balloons::cake:

Kudos, @Webdog! Excellent piece of advocacy.

Not at all, I can understand the wish for a tidy forum and things in their proper place! :)