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  1. Kalliope

    BPS attempts at psychologizing Long Covid

    no, it's not far fetched. Nina E. Steinkopf recently explored this in her blog post ME, the insurance industry and psychiatry (forum thread here) Also, Lightning Process is HUGE business, and the health care system is only too happy to have something like that to refer difficult patients to...
  2. Kalliope

    BPS attempts at psychologizing Long Covid

    The interview with Paul Garner is towards the end and in English. He very exhausted and started believing that he would not get better because of the anxiety about the illness in society. Fed into his insecurity. But then he understood he could have some control over the symptoms by how he...
  3. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Nina E. Steinkopf has looked further into the financial conflicts of interests in this study, and also about the network to these researchers: - Professor (MD/PhD) and specialist in general practice and psychiatry Egil Fors was project manager for CBT-study. At that time, he was employed at St...
  4. Kalliope

    Norway: Author and journalist Jørgen Jelstad

    New review of the book. Quote: If you have ME patients in your family, in your circle of friends or as a spouse or child, you are wise to read about the disease, stay up to date, familiarize yourself with research results, literature and more. Knowledge also provides security. The book "Our...
  5. Kalliope

    News from Scandinavia

    Specialist in psychology, couple's counsellor and chronically ill Frøydis Lilledalen has an opinion piece in the Norwegian newspaper for medical news Dagens Medisin where she challenges some medical dogmas. Våger vi å utfordre etablerte sannheter? google translation: Do we dare to challenge...
  6. Kalliope

    Long Covid treatments

    The Norwegian Health Trust Helse Møre og Romsdal had an article yesterday about an offer that's starting up for patients with lingering symptoms post Covid-19. This is the first time I've seen pacing mentioned in Norway as an approach for this patient group. It's even a psychologist recommending...
  7. Kalliope

    Long Covid treatments

    I wonder if it might be an idea with a thread for different (non-BPS) treatments that are being tried out for Long Covid? The Danish Public Broadcaster has today an article about an ongoing study on Q10 with 120 participants. Quote: In our cells we have a power plant that doctors and...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    TIME Long-COVID-19 Patients Are Getting Diagnosed With Little-Known Illnesses Like POTS - A significant percentage are suffering from syndromes that few doctors understand or treat, primarily postural orthostatic tachycardia syndrome (POTS) and chronic fatigue syndrome (CFS). In fact, a...
  9. Kalliope

    News from Scandinavia

    The Norwegian ME Association has today officially asked the Norwegian Directorate of Health to update their national guidelines for CFS/ME. Google translated quote: We justify the need for a revision on the basis of three factors: 1) A significant change in the research environment which has...
  10. Kalliope

    2021 Guardian Australia: Request for contact from people with multiple chronic pain conditions

    Thread split from https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19-long-covid.14074/page-215#post-346720 I have no idea where the Guardian is planning to go with this, so might be wrong thread. The Guardian: Tell us: do you have multiple chronic pain conditions? Quote...
  11. Kalliope

    New Video: Long Covid, Post Viral Fatigue Syndrome and ME/CFS

    Tweets from a lung doctor about the video: This is a very helpful video explaining the difference between post viral fatigue and ME/CFS. Important for HCPs treating #longcovid to understand the difference. The key - listen to your patient, don’t recommend treatment that will make them worse...
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article doesn't mention ME, but some recognisable descriptions from patients with Long Covid. Good to see the article recommending to listen to one's body. India Today: The long Covid tale: If you are recovering from coronavirus, this is normal - A long Covid-19 is a reality and we must...
  13. Kalliope

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    Nina E. Steinkopf has written a comment where she raises several problematic issues about the study, among others this: - The I-CBT 8-week intervention took place at the Coperio health centre. Coperio has an agreement with the Central Norway Regional Health Authority, a state-owned regional...
  14. Kalliope

    Human Leukocyte Antigen alleles associated with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Fluge, Mella et al 2020

    There's a thread with link to the printed thesis here: https://www.s4me.info/threads/human-leukocyte-antigen-associations-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-and-immune-modulating-treatment-2021-lande.20666/
  15. Kalliope

    Human leukocyte antigen associations in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and immune modulating treatment, 2021, Lande

    It begins very good: Preface During this doctoral degree I have read a lot about ME/CFS, and I would like to emphasize a few points that I have reflected upon. The first is the striking severity of the disease. Stories from patients and relatives have made me understand how much ME/CFS really...
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Oh, that's interesting. I had the impression Long Covid was preferred over PASC by patients. Here we just don't talk about it, or we use euphemisms. The biopsychosocial brigade has been busy spreading the word that information about it causes it. Young people believe an infection has no risk...
  17. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Neurology Today: Drs. Anthony Fauci and Walter Koroshetz on the Turning Point for COVID-19 and the Work That Remains quote: What is post-acute sequelae of COVID-19, or TASC, and how is it different from other post-viral syndromes like chronic fatigue syndrome? Dr. Koroshetz: We know very...
  18. Kalliope

    Cambridgeshire Live article: Cambridge Dad living with ME becomes so exhausted he can't walk downstairs

    A great article and interview! They've managed to include a lot of information.
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