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Really great speech. Thanks for sharing. By the way: this Millions Missing event in Glasgow seems very big and professional. It's like a music festival!

Same here with my Garmin Vivosmart 3. A bit disappointing.

I think using blinded assessors is an easy way to improve things a little, but it doesn't change the crux of the matter: the fact that both patients and therapists know which is the intervention group and that patients receiving GET and CBT are being trained to interpret their symptoms in a...

Actually, his first paper was a weird report on Dementia. At least, that's what he says on his website:

I think there's a risk that the advice that deviates the most from what people are already doing or would instinctively do, will be seen as the intervention, the advice that is designed to be the active test. For example, if you give one group the advice: "sleep as many hours as you feel you...

Thread merged I know that not all forum members are on Facebook or Twitter, so I thought this thread might be a good place to share some pictures and info on the Millions Missing events this year. I helped organize a Millions Missing event in Gent, Belgium. We had a really cool location in the...

Thanks Andy. Excellent report. Really happy with Morton's group in the UK. Look forward to their publications.

I thought the response of Dr Jones was a bit embarrassing. "the data are a decade old now"... The data do not need correction it's the 2017 bjgp editorial that misrepresented those data that needs correction. Why are all these responses from editors so disappointing...

Good letter @Hutan. It seems that you and @Ravn are doing some excellent advocacy work in New-Zealand.

3) The rebuttal: It is not our understanding/interpretation of the literature that CBT for chronic fatigue is based historically on the fear avoidance model. Although there are certainly parallel concepts, we believe this is a mischaracterization. CBT for CFS was introduced by the research...

2) Comments from the editors and reviewers: Dear author, We very much appreciate you taking the time to submit a commentary in response to a recently published article in the Journal of Contextual Behavioral Science. We greatly value constructive discussion on important issues relating to the...

1) The letter: Acceptance in ME/CFS: commentary on Jonsjö et al., 2019. With Jonsjö et al.’s study on acceptance and commitment therapy (ACT), a new form of psychotherapy has been trialed in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). [1] For many years, the...

Jonsjo et al. recently published a feasibility study on acceptance and commitment therapy (ACT) in ME/CFS. The study described itself as the “first trial of ACT for patients diagnosed with ME/CFS.” https://doi.org/10.1016/j.jcbs.2019.02.008 (The study has a thread here: Sweden: Acceptance &...

The authors write (on page 18): I can't seem to find a supp Table 2. Has anyone seen it? Perhaps it still has to be uploaded, because this isn't the final version of the paper yet.

Yes, this doesn't make much sense. An old population study by Wessely and Chalder used that cut-off score of 4 on the CFQ and found that 18% of the patients in primary care had chronic fatigue. So this doesn't seem to be a good cutoff if you want to find "markers of disease mechanisms" in...

Same here

I would like to learn more about the hand-grip study results. I find it impressive that such a simple test could differentiate ME/CFS patients from healthy controls and MS-patients. But I don't quite understand how I should interpret the results since only three measurements were taken. One...

It reminds me of the first time I went to the gym to do power training and I did a bit too much. The exercises were hard and difficult but at the time you don't feel like you're overexerting yourself. It's only the day after that your muscles are sore and you can't move like a normal person...

Interesting thread. I think there are two good arguments raised against the hypothesis that PEM is due to a signaling issue such as when you have the flu. I would like to elaborate on them using my personal experience: In my case, there seems to be a red line, an amount of activity or energy...