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MS=Multiple Sclerosis? Michael Sharpe?

New thread:

Unfortunately it is a fact of life that everyone passes away eventually. It would be great if people with the illness considered supporting ME or CFS causes in your will. There are different sorts of charities and funds one can support e.g. research or non-research. Many of us can struggle to...

Probably not very important but I just noticed that the full paper was reproduced here: https://www.europeanhealthjournal.com/2018/04/26/rethinking-the-treatment-of-chronic-fatigue-syndrome-a-reanalysis-and-evaluation-of-findings-from-a-recent-major-trial-of-graded-exercise-and-cbt/ They don't...

I decided to Google the study to see where it was mentioned. Here is a blog post: A comment on the conclusion: Just because people may be somewhat deconditioned doesn't mean that they will be able to get better with graded activity/exercise before the underlying cause is dealt with.

Thursday, June 07, 2018 Chronic fatigue: even if it's in The Lancet, it deserves reproduction of the test... surprise! The journals publish innovations before competitors! Articles are accepted without well see if the criteria of judgment of the manuscript are those of the Protocol... officially...

I agree. She was a great help to me in 2010-2011 with my paper: "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx A...

This is what the Blue Ribbon Foundation does: http://theblueribbonfoundation.org/blue-ribbon-fellowship/

Reference List 1. Wessely S: The history of chronic fatigue syndrome. In Straus SE (eds): Chronic Fatigue Syndrome. New York: Marcel Dekker, 1994. pp. 3-44 2. Underhill RA. Myalgic encephalomyelitis/chronic fatigue syndrome: an infectious disease. Medical Hypothesis. 2015;85(6):765-773...

Although these studies provide validity to the diagnosis of ME/CFS, there is still no definitive explanation as to who actually develops the pathology. Clearly not every individual with chronic stress suffers from post-exertional malaise. The epidemiologic studies of ME/CFS separate it from...

Ken Friedman sent me this and asked me to highlight it --- A Narrative Synthesis for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome The conceptualization of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (from here on referred to as ME/CFS) has classically been...

I disagree a definition with more symptoms brings in more psych patients. The same patients by definition would also satisfy a definition with fewer of the same symptoms. It's basic set theory. You don't suddenly get new patients by adding stricter criteria/more symptoms.

I highlighted the issue on my Facebook page . I have now highlighted on Twitter that a journalist is looking to people who are affected.