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Or place markers to keep free for NHD & HPA? And A.N. other. Who knows! :laugh:

Why on earth is "Body Beautiful" a stakeholder? They seem to be a series of beauty salons around the country. The so called "Body Beautiful Clinic" is similar, though it says it's a "beauty therapy centre". What does that have to do with ME and being a stakeholder on the Nice Guidelines? :wtf...

Bit out of things at the mo, but found this which might be relevant? Looks as if the "previous" med adviser was Mansel Aylward? http://www.meactionuk.org.uk/PACE-PIs-and-the-DWP.htm

My MP wasn't able to go to the debate, but I had a kind email from her yesterday: The thing about Tribunal was that I thanked her for her help with my complaint to Atos, and filled her in on outcome at Tribunal, which I hadn't been able to do before. Mainly because attending the Tribunal...

There were two email addies for her, I assume the second is probably her researcher (wrote to both). But I'm not sure if others can attend - these things are for MPs only? OK, yes, public may get in to some of these things, but suspect not much space. So I don't know if her researcher can attend...

Have written to my MP. She is very busy - she's one of the really hard working ones - so doubt she'll be able to attend, but at least I've done my best! She will be sick of getting emails from me - seem to write to her half a dozen times a year at least! She really is great though, and either...

Go to Parliamentary TV on the day, then look for Westminster Hall debates. I think that's how I found the last Westminster Hall debate I wanted to watch. Hopefully somebody more together will find you a better answer!

When there's a Westminster Hall debate there's a specific live TV stream for that... Great thing is if you miss the start you can watch from the start. If you see what I mean! :confused: And it'll all be on Hansard the day after. :)

I left a comment on Carol Monaghan's FB page.

Very chuffed to find that part of my evidence was quoted! :) On the second page, Patient Experiences.

:scream: :wtf: :banghead: :bawling: :walkingdead :yuck: :ill: :eek: :thumbsdown: :sick: :grumpy: :facepalm: :mad: :mad: :mad: Thought we had a barf emoji, but obviously not. Hope expressed well enough with my little collection! ;) What is wrong with these people? They call us crazy, but they...

Luckier than you in that I got sick in my mid forties, but after 25 years and now age 69 I don't expect to see changes for the better in my lifetime. :( I've been very lucky with my GPs though, for which I am very grateful. They have never refused to look into new symptoms. This is something...

This may not be the place for this, but an occupational psychologist I did a work placement with (had a particular interest in ME, Fibro and MCS amongst other things, though main focus was workplace stress) suggested I look at the work of Borg (no, not that Borg :borg: ;)) on perceived exertion...

I very much doubt it - this is the Grauniad, well known for denying ME and taking the BPS side. :emoji_japanese_ogre:

Could the mental fatigue and physical fatigue be "measured" using separate questionnaires? Or does that make things over-complicated? The Chalder thing is a load of carp anyway, so why not make something better for both fatigue components. Oh, and when it comes to having problems with starting...

Your link to Sense about Science USA & the pace trial no longer works. I did a quick search on the site, and came up with this - you might want to take a look. http://senseaboutscienceusa.org/pace-research-sparked-patient-rebellion-challenged-medicine/ I haven't had time to read it yet, other...

Rather like those who take money from DWP via Atos (or whatever they call themselves these days) to screw patients, :arghh: and not just ME patients. Grrrr. :arghh: :eek: :yuck:

Yes, that's the one. Deary was there too, he was there for a while before being chucked off. I think the computer that I had that stuff on was so long ago we probably chucked it out years ago. I'm not a great one for backing up even though more recently I have cloud back up capability that I...

It was the Yahoo email List set up by Colin Barton. From what I recall somebody was a bit critical of his ME Group, so he pulled the plug on the List and deleted all the archives in a fit of pique, with no warning.

I can't believe I'm "liking" all this stuff! :rolleyes: Time for a "hate" button methinks. ;) Though appreciate the information of course, so I guess that's why I Like it. :cautious: Makes me feel like tearing my hair out and screaming and weeping though! :arghh: :eek: :bawling: