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How can there be any form of factually correct understanding if they are trained by those that refuse to diagnose ME properly or understand the difference between ME and cfs ? Most if not all young people with ME are having to have private diagnosis to make sure they are safe with the knowledge...

He was the president of the RCPCH part of CBT studies and brought in Fabricating and Inducing Illness

Have you ever had a test for histamine? This is a simple test of urine, it is a NHS test. The other factor her is the research into Parasite and virus. So if all ME patients were tested for these we could then see which impacts on the patient and which combination has the most impact. Then we...

In the UK Professor White in 2014 knew about POTS but dismissed it and that has been the general rule. My son was diagnosed with POTS in 2016 and ever since they have been trying to take the diagnosis away. You have to wonder why they do not do a simple stand test and look at the patients...

Well that made me grumpy on a Monday Fluff a Duck. It seems to me as though they are supporting therapists rather than patients with Lightning Process and then the ACT. I wonder if you follow the money where it will lead ?

Is there a list of their funding? I know they did the MAGENTA trial together and I know there was other trials in the UCL but cant remember which ones they were now.

We what the hell happened for the medical profession to loose that understanding? Why haven't we got the ability to track and trace what happens and why with our autoimmune system and how did all that get blamed on anxiety. I think there was a Canadian who was looking into tracking every virus...

My heart hangs heavy. As in my area they will not recognise any form of dysfunction that they cannot see in a blood test many with POTS and Mast Cell dismissed and how many forced to FND is forever climbing. What then for them what then

I feel sad reading this back through has BACME won? I fear so. Unless and effort is targeted and CBT and GET taken down we will loose a lot more children's childhoods and a lot more lives that can not bare the pain of ME that lasts a lifetime.

Whoop whoop and thanks for letting share your fantastic work now Tweeting :-) lots :party:

I have two cups of coffee already and still cant sit still we so need so much more of this.

Not that I am aware of at the moment but I have started to look and ask. There is always a plan of action with EC research so I would say some funding with regards to mental health or digital has become available? Again I will keep my ears and eyes open. I would suspect this is an ongoing plan...

That is from Dr Glasier and we are looking at getting this taken down her teaching is appalling listen to the radio https://www.bbc.co.uk/programmes/m00030dr?fbclid=IwAR2D6FOrq7za-jbyX_fGk6D1sYNVA_dGU9IV_QEGY-RUZIY1w0GYLjeMh1Ias Gigi mum was accused of being a refrigerator mother as @Sean...

Sorry been working my way through FII with some other mum's and there is a lot going on. Not sure Crawley had a Fabricating or Inducing Illness one she had MUPPETS that fed into it. The FII pathway was set up by Dr D Glaiser and Sir Stephens with RCPCH they are truly appalling and have now...

Couldn't get to the end I was already spitting out feathers. I get the feeling there is a reason why they have published now. These things don't just happen with this subject.

Fluff I'm bad so so bad, Crawls away in shame. But the Article itself does not tell the reader that and that is the worry? But why republish this now - there is always a game plan. The term "medical exam" is being used when young people are due for an appointment at CFS clinics and parents...

Panic over sort of :banghead:. Why does the date come up as 15 April 2020

It made my eyes water does this now mean that Crawley is part of the collaboration still and attached to Action for ME with the comment from her friend Hammond on how anxiety about coron19 is going to make more problems with health are we going backwards. Children from Bath are being asked to...

This is where Invest in ME is? and this involves some degree of CBT/mind control? How is this all gelling together? Feel a bit uneasy about this

Yes they did and they do not encourage patient participation. I would be doubtful if they would report harm of any degree from experiences of those that attend the best you can hope for is supportive letters?