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  1. Sly Saint

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    @Emily Taylor ? eta: https://solvecfs.org/dr-nancy-klimas-talks-me-cfs-and-the-need-for-better-medical-education-with-sheknows-com/
  2. Sly Saint

    FITNET-NHS Esther Crawley - 5th protocol out now

    another one! 19 Dec 2019 Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to activity management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): amendment to the published protocol...
  3. Sly Saint

    Blog: BMJ Opinion: Dear Father Christmas—The BMJ Patient Advisory Panel’s wish list

    link taken from comment All I Want for Christmas … Is a Better Scientific Publishing Model https://powerfulpatients.org/2019/12/11/all-i-want-for-christmas-is-a-better-scientific-publishing-model/
  4. Sly Saint

    Why is ME/CFS so neglected?

    as seen recently with a couple of new research studies, this is perpetuated due to the huge amount of flawed 'research' that is out there that is repeatedly regurgitated, and several individuals who continue to highlight it to all and sundry at every available opportunity. Like the recent...
  5. Sly Saint

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    so is this implying that people who have ME (CCC) as opposed to Fukuda CFS are the patients with 'mental health issues' (?) an attempt to return to the 'status quo' before the 'resurgence' of the use of M.E.(?)
  6. Sly Saint

    The Impact of a Structured Exercise Programme upon Cognitive Function in Chronic Fatigue Syndrome Patients, 2019, Zalewski, Morten, Newton et al

    Respiration key to increase oxygen in the brain https://news.psu.edu/story/600381/2019/12/04/research/respiration-key-increase-oxygen-brain Would it not be possible to try increasing oxygen saturation without exercise? From a bit of googling, oxygen saturation at night would also be...
  7. Sly Saint

    Ensuring IAPT Makes A Real-World Difference - Scott: Dec 2019

    http://mhfmjournal.com/pdf/ensuring-IAPT-makes-a-real-world-difference.pdf see also £3 Billion Spent On Talking Therapies For No Clear Benefit http://www.cbtwatch.com/3-billion-spent-on-talking-therapies-for-no-clear-benefit/
  8. Sly Saint

    Applications open for Australian government’s $3m ME/CFS grant

    Merged thread Current Grant Opportunity View - GO3105 NHMRC Targeted Call for Research (TCR) into Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) Grant Activity Timeframe: Late 2020 Total Amount Available (AUD): $3,000,000.00 Instructions for Application Submission: Applications...
  9. Sly Saint

    #MEAction Scotland News

    update PPC/S5/19/22/21 Public Petitions Committee 22nd Meeting, 2019 (Session 5)Thursday 19 December 2019 PE1690: Review treatment of people with ME in Scotland https://www.parliament.scot/S5_PublicPetitionsCommittee/Submissions%202019/PublicPapers19Dec19.pdf (page 3) Webpage...
  10. Sly Saint

    United Kingdom: ME Research UK (MERUK) News

    current job opportunities within ME Research UK. Science and Engagement Director ‑ Full-time https://www.meresearch.org.uk/vacancies/
  11. Sly Saint

    Image Duplication Prevalent in biomedical papers (Elizabeth Bik)

    I posted about another of her investigations here https://www.s4me.info/threads/magical-treatments-and-lack-of-peer-review.9798/#post-173492
  12. Sly Saint

    The country that closed its psychiatric hospitals

    it seems that not all MH patients are that keen on psychiatrists either
  13. Sly Saint

    How Twitter is changing medical research - Wetsman Dec 2019

    https://www.nature.com/articles/s41591-019-0697-7 behind a paywall and no sci-hub link but readable here:
  14. Sly Saint

    Ireland - Positive Preliminary Meeting with Minister re Future of Care for M.E. Dec 2019

    On Wed 4th December 2019 members of ME Advocates Ireland (MEAI) met with Minister for Health, Simon Harris TD. By Joan Byrne full blog here https://meadvocatesireland.blogspot.com/2019/12/positive-preliminary-meeting-with.html
  15. Sly Saint

    ME/CFS services in the United Kingdom

    job ad "NICE,1997"?
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