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  1. Sly Saint

    CNN front page story about Ron Davis and Whitney Dafoe

    Jen Breas account of meeting Whitney Meeting Whitney
  2. Sly Saint

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    eta: apparently they 'ran out of time' to answer patients questions!?? I thought that was the whole point of these calls(?)
  3. Sly Saint

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    re Cancer and CBT published may 2019 "Manualised cognitive–behavioural therapy in treating depression in advanced cancer Headline Cognitive–behavioural therapy delivered through the Improving Access to Psychological Therapies Programme did not achieve any clinical benefit in advanced cancer...
  4. Sly Saint

    Gary Burgess: How I've learnt to live with an invisible illness. (ITV reporter)

    Gary is a member here https://www.s4me.info/threads/the-me-show-series-two.7873/
  5. Sly Saint

    UK: Disability benefits (ESA and PIP) - news and updates up to end of 2020

    PIP review changes come into force 31st May 2019 https://www.express.co.uk/finance/personalfinance/1134468/pip-assessment-dwp-disability-benefits-uk
  6. Sly Saint

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    a basic Google search for the last 24 hours and I get " Searches related to myalgic encephalomyelitis chronic fatigue syndrome me cfs craniocervical instability symptoms craniocervical instability surgery craniocervical instability prognosis virology course tuller me cfs craniocervical...
  7. Sly Saint

    Magical treatments and (lack of) peer review

    eta:hmm, maybe he draws a magic circle and says stop?
  8. Sly Saint

    #MEAction Scotland News

    Scottish Petitions Committee discussion on M.E./CFS
  9. Sly Saint

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    A cautionary tale Unum Forces Claimant To Have Surgery Under Threat Of Claim Termination https://lindanee.wordpress.com/2019/05/23/unum-forces-claimant-to-have-surgery-under-threat-of-claim-termination/
  10. Sly Saint

    ME in US medical school curricula

    https://www.newhavenbiz.com/article/with-gift-qu-med-school-adds-study-of-chronic-fatigue-syndrome-to-curriculum
  11. Sly Saint

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    do none of these journals, or journalists consider "The [prof] doth protest too much, methinks" ?
  12. Sly Saint

    Ros Vallings (NZ) to give series of talks in Ireland - May 2019

    For those readers wanting more info on Dr Vallings https://www.s4me.info/threads/new-zealand-dr-vallings-view-on-the-personality-type-of-people-with-me.6636/ https://www.s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/
  13. Sly Saint

    IiMER International Conference Week London 2019

    https://twitter.com/Invest_in_ME/status/1133399624188944389 https://twitter.com/Invest_in_ME/status/1133399991400058881
  14. Sly Saint

    Guardian - "Why smelling good could come with a cost to health" May 2019

    full article here https://www.theguardian.com/us-news/2019/may/23/fragrance-perfume-personal-cleaning-products-health-issues
  15. Sly Saint

    IiMER International Conference Week London 2019

    looks like it was well attended eta: eta2:
  16. Sly Saint

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    @Jonathan Edwards could you take a look at this video sometime and see if there is anything of relevance. it does also cover to what extent the patients improved but also any negatives; the extensive testing before they are considered for surgery etc etc also mentions MCA POTS, and improving...
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