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Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique https://onlinelibrary.wiley.com/doi/abs/10.1002/msc.1430 (not yet available on sci-hub)

now on youtube

Not just a vitamin C issue Diet-induced oxalate nephropathy https://casereports.bmj.com/content/12/9/e231284

:rofl:

Back in 2016 Local group ends its 11-year relationship with CFS unit at King’s College Hospital | 5 July 2016 https://www.meassociation.org.uk/2016/07/local-group-ends-its-11-year-relationship-with-cfs-unit-at-kings-college-hospital-5-july-2016/ This is the bottom line and the charities and...

(not posted direct link to article as unsure of copyright/distribution permissions)

On tomorrow https://www.healthcareconferencesuk.co.uk/conferences-masterclasses/medically-unexplained-symptoms-somatic-symptom-disorder-improving-practice Follow the conference on Twitter #medicallyunexplainedsymptoms eta: very few tweets............possibly not very well attended, shame :angelic:

Identification of actin network proteins, talin-1 and filamin-A, in circulating extracellular vesicles as blood biomarkers for human myalgic encephalomyelitis/ chronic fatigue syndrome AkikoEguchi,SanaeFukuda,HirohikoKuratsunede,JunzoNojimag,YasuhitoNakatomi,YasuyoshiWatanabee,Ariel E.Feldstein...

Interesting read. don't know if there is any way for people to show support to the creator of sci-hub? https://www.theguardian.com/science/2017/jun/27/profitable-business-scientific-publishing-bad-for-science?CMP=share_btn_tw

@JenB have you or any other member of your CCI etc FB groups done Ron Davis nanoneedle test? @Ben H will RD be publishing or releasing information re the nanoneedle testing he was proposing to do on ME/CFS patients going to have CCI surgery?

note the hashtag #mentalhealth "How can a talking therapy help with a problem that feels as physical as chronic fatigue syndrome?" sorry, but if that doesn't spell out that it is being treated as a mental health disorder........... I hope this is being passed on to NICE @adambeyoncelowe...

eta: also available here https://player.fm/series/lets-talk-about-cbt/cbt-for-chronic-fatigue-syndrome eta2: clearly shows that the CBT for CFS is same as GET "doing exercise in a safe, regimented way" TC explains boom and bust, and talks about the evidence base, IAPT. "majority of people I...

Financial aid hard to access when chronically ill https://theworldnews.net/nz-news/financial-aid-hard-to-access-when-chronically-ill

another one https://www.thedickinsonpress.com/lifestyle/health/4778752-Overcoming-M.E.-a-daughters-struggle-to-find-treatment-locally-for-severe-pain

But having then classified all these patients with BDS ( as he currently does with FSD) he still has no effective treatment for any of them. So the point of this exercise is....?

P15 Does the NHS offer equitable access to specialist paediatric clinics? A study of inequalities in outpatient referrals to eight paediatric subspecialties FK Neale1, EJ Armstrong1, J Cohen2, TY Segal2, DS Hargreaves3 https://bmjpaedsopen.bmj.com/content/3/Suppl_1/A9.3

or "Stop telling women they're mad when they're really ill"