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Yes, I echo @Andy, it is so important to distinguish between increased fatiguability and PEM, as the former is found in many conditions whereas the latter is characteristic of and possibly unique to ME. Without this understanding it is impossible to address the validity/reliability of...

Despite Prof Deeks’ optimistic hope that subsequent vaccinations may positively impact on Long Covid, I suspect that we will see the same variation in response as we see in people with ME’s response to vaccinations, that some/a few will see a sustained improvement, some will see a transient...

I have always understood that depression could be triggered by any viral infection and this was in part a chemical balance issue, though I don’t know if this is based on any formal research. Many years ago a friend in his mid twenties with a successful business and an apparently happy marriage...

Not seen the article (behind paywall), but I hope they conclude that nothing can be concluded in such a small scale open labelled trial other than they have demonstrated a full double blinded trial would be feasible.

By coincidence, this morning I woke with grape sized swelling (hematoma?) on my right upper eyelid. I have occasional bruises on my legs and arms, but it did not occur to me that they were not the the result of a knock or bang I had missed, until several years ago I woke with a black eye. It...

Crossposted with @Ravn As @Trish pointed out any decision on whether to have the vaccinations involves not only looking at the risk of having the injections, but also the risk of not having them. So any organisation pointing out the risks of being vaccinated should be duty bound to point out...

The Abstract says: I would word it ‘there is a growing body of poorly evidenced opinion and belief’.

Any use of a stimulant with ME should be treated with caution, given the risk of it taking people’s activity levels over their individual thresholds for triggering PEM and because of the possibility of sustained use encouraging sustained over exertion with consequent deterioration in the...

Always important to check out new symptoms with a doctor.

The extract seems to suggest the author was also using an unexpressed additional definition of a condition best described as idiopathic chronic fatigue of unidentified aetiology, and ignoring the symptoms other than fatigue necessary for most of the more accepted definitions of ME/CFS. I regard...

An important new site, given LP relies on their own anecdotes of success to sell their dangerous treatment, especially in Norway where LP seems to have made unfortunate inroads with some of the medical establishment.

Though not always strictly true, this was always the most likely Government response. I hope however people continue to sign this while it remains open; it is an achievement to reach the 10,000 trigger to elicit a government response despite only being open to UK citizens and/or UK residents...

I suspect with researchers like Crawley, their Universities will continue to back them as long as they keep bringing in the research funding they do. For example with Crawley, though she brings controversy, she also brings the funding, research posts and publications that helps keep up the...

Here in the UK people considered at high risk, those seen as imuno-compromised, are being offered a fourth vaccine (now called the booster) three months after their third jab. As always this generally is not including people with ME, unless they have proactive GPs or manage to put up an...

I wonder if our reaction to vaccines varies where we are at in the course of our ME. Some twenty years ago, when my ME was just moderate, I stopped having flue jabs because they would result in three weeks in bed and as I no longer working I could at least avoid anyone with symptoms. However...

That sounds like a good idea. Not heard of it happening in England.

A UK article, in today’s Independent, on this topic, see “Boris Johnson’s Covid plan puts 500,000 ‘forgotten victims’ at risk, charities warn ‘There is no end in sight’: Immune-suppresed face anxiety as restrictions lifted”...

Obviously here in the UK we have the prospect of mask wearing becoming totally optional and in the near future the dropping of quarantine for those testing positive with Covid being a legal requirement. Recently I had two instances of people I know ignoring social distancing: one someone...

Thank you for pursuing this exercise. The layout is much clearer than the trial run and I think separating out severe and very severe in the last question is a good move. I still have a problem responding in relation to an image that is a poor representation of ME in general but could still be...

I was perhaps being pernickety, but I interpreted your statement as intending a general principle that B12 should never be supplemented if current levels are within normal levels, whereas there is the exception if you have good reason to anticipate supplementation is necessary to prevent the...