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Ugh. having had a parent who lived through very severe dementia, minimal cognitive capacity remaining and negative quality of life for over 10 years I have a very clear understanding of the extreme of this situation. But I also recognise that there are huge risks around the whole topic and...

Is cumin the one that makes cold sores flare up?

Agreed about ordinary people who are lucky enough to own a home but not lucky enough to have offspring. That covers me and my will includes a legacy to go to an ME research fund, obviously exactly which one is the best option is kept under review.

Bloody marvellous presentation @Simone :hug::hug: Hope you can rest now

Not being able to concentrate for long periods and the difficulty that caused with trying to juggle lots of work tasks was a major factor in me not being able to keep working. I have to rely on keeping lists and scrappy notes nowadays for everything. I found when I was doing the refurb on...

I suggest all CBT “researchers” immediately turn their attention to the urgent issue of social media addiction where their abilities can be put to much better use than trying to reprogramme chronically ill people.

Awesome post @Sean

Maybe Walitt will make a surprise guest appearance :whistle:

Bad research such as the Smile trial will always find funding from some opaque trust or other. I think @Ravn point 5 is a good one. Patients who fund charities should have clarity over what the hypothesis is behind any research their money is going to so they can exercise their choice whether...

It’s not as if there’s such a thing as a universal best approach to sleep. Sleeping in the daytime isn’t a bad thing. At nursery school we had a sleep after lunch old people are allowed naps. In warm countries people sleep in the hot afternoon and are busy in the evening. As I understand...

Good article I hope the other Guardian journalists have read it some of their articles are high up on the list for contributing to harm. I stopped reading the Guardian as a result for about 5 years.

Good point

Not a fan of Apps in general but something along the lines of Visible captures changes in symptoms reasonably well.

https://www.diabetes.org.uk/diabetes-the-basics/other-types-of-diabetes/latent-autoimmune-diabetes Information from Diabetes UK on LADA

The picking apart of the basis for the paper’s claims for effort preference going on record through letters, papers must surely be of value. Whatever lack of insight or professional politeness prevented this stuff getting rejected by NIH at an earlier stage its lack of credibility as research on...

Ugh. Can’t bring myself to click this link. @dave30th may be interested?

When I was experiencing undiagnosed mild ME for several years I didn’t register cognitive issues separately from feeling ill with flu like symptoms.

Jumping to conclusions, how ironic

http://sallyjustme.blogspot.com/2014/08/index.html @Keela Too wrote her blog a few years back

I think I saw an electric tricycle when I was browsing around a few years ago. That would be a lot more stable although obviously a lot bulkier and bigger storage space needed