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  1. S

    The New Yorker: The Neuroscience of Pain

    Placebo effect of course. ;)
  2. S

    Dysautonomia International Conference 2018 (Nashville, TN)

    I think this is the root error in the medical system. If this one error - defaulting to psychological cause - was corrected there would be much less iatrogenic harm and death; fewer needless appointments / testing and more accurate referrals / testing; better patient-physician relationships; and...
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    Effects of a short-term aquatic exercise intervention on symptoms and exercise capacity in individuals with CFS/ME, 2018, Broadbent et al

    Just a thought and from a 'chance to educate' perspective: How would you folks feel about inviting the lead author, Suzanne Broadbent, to this thread to discuss her research methodology and criteria?
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    Presentation: 'A critical approach to Medically Unexplained Symptoms’

    Would it be possible to share your presentation? There is a MUS movement in Canada spearheaded by the Medical Psychiatric Alliance that has $60 million in funding, so any material that can help us would be appreciated.
  5. S

    Invest in ME: Status of Research, Treatment and Perception of Myalgic Encephalomyelitis 2018

    I could not agree more. A close second is the lack of spine from political and health care leaders to change the institutional failure / error / bias.
  6. S

    Evidence Week - Sense About Science

    Maybe Evidence Week should also have a theme of "Evidence Weak" to highlight PACE and its ilk.
  7. S

    Government and Insurance companies - establishing the BPS model

    No worries, it was beneficial to learn Wessely is on LDI's scientific board and his tentacles reach into Canada. We may have to edify LDI about patient concerns about Wessely.
  8. S

    Government and Insurance companies - establishing the BPS model

    I think LDI may stand for Lady Davis Institute (for Medical Research).
  9. S

    Government and Insurance companies - establishing the BPS model

    Awesome, thanks for this - my wheels are turning.
  10. S

    Recognizing and Improving Care for ME/CFS, FM and ES/MCS (Canada)

    "...convening experts on all 3 conditions to establish case definitions and subsequently to create clinical practice guidelines that will be valuable both for everyday recognition and management and for formulating a basis for research..." The Task Force Report recommendations the article is...
  11. S

    The ME Show

    Listened last night - great job @Gary Burgess and @Trish I'm a total believer in the importance for the ME community to create media to move our collective efforts toward equitable health care and this podcast is exemplary.
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    Tri-Nation Meeting (UK, US, Can), 2000 or '01. Heard of it?

    Hey folks, I was chatting with a long time Canadian advocate and she recalled seeing a document online in about 2005 that referred to a 2000 (or 2001) tri-nation meeting on ME. Any one aware of such a meeting, or have any documents to confirm? cheers, Scott
  13. S

    Neuroscience News: Is a Stress Shot on the Horizon?

    A mostly BS prediction: there will be a high correlation of that 'anti-stress' bacteria already existing in sociopaths.
  14. S

    Journalist Requests ME Employment/Disability Stories

    Pointed him toward Hillary Johnson.
  15. S

    Jaime S - #MEAction Director of Scientific and Medical Outreach

    Awesome choice as @JaimeS adds priceless lived experience to go with all that book-learnin'.
  16. S

    youtuber: Have you been misled...? // What is PACE? // Medical Scandal

    Beyond her engaging personality, the other big draw for me was aesthetic, her sense of style: the colour of the carpet / her hair / lipstick / eyes in contrast with her pillow / sweater, really made her face 'pop' - I found myself more entranced by that visual than the verbiage.
  17. S

    (Not a recommendation) BMJ Opinion: Missing the psychosocial diagnosis—a form of institutionalised malpractice

    My comment: Given that medical error is the 3rd leading cause of death in the US (and probably very similar rates in other 'developed' countries), and misdiagnosis of biological / organic illness as psychological the greatest contributor to these deaths, this editorial essentially promotes...
  18. S

    Clare Gerada: influence on UK medical practice and ME/CFS management

    She seems very focused and intent on pushing her motto that patients complaining kills physicians. And see she's now started using '#compaintskill' to help push it into twitter world. Alliteration is a good promotion tactic. #Clarekills is another alliterative example.
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