Search results

Are you getting checked for CCI? (I know that is easier said then done)

A friend with Lyme sent me this edifying link the other day: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5872223/ The collusion between a medical group and insurance companies was news to me (in the body of the paper). 1 million people are predicted to get infected with Lyme disease in the...

Things that caught my eye when skimming... "...studies using animal models of neuroinflammation-induced cognitive damage support the neuroprotective effects of cannabinoids..." "...suggesting that cannabis use may have a greater effect in suppressing HIV during acute infection..." "Just as...

Why is Klimas wasting precious time and resources on psychosocial factors? There are far more important aspects that should be pursued. Maybe I'm missing something?

Worth repeating:

Fwiw, I suspect I'm not more sicker because of my HIV meds - but obviously have no proof, just anecdotal reports such as yours.

I had to google 'action t4'...from wiki... Aktion T4 (German, pronounced [akˈtsi̯oːn teː fiːɐ]) was a postwar name for mass murder through involuntary euthanasia in Nazi Germany. Yep, sure seems like the same modus operandi. _______ Heck, I may have been ignorant of 'action T4', but even my...

@Milo A thought: The Canadian Patient Safety Institute is supporting the development of the Patient Alliance for Patient Safety - I'm a member via Health Quality Ontario and we're close to 'launching'. An org can be a member of PAPS, giving it a voice in PAPS direction and efforts - possibly...

In this episode of Medical Error Interviews, I chat with lawyer Lisa Alioto - who once summited Mt Kilimanjaro - where 50% who attempt, fail and have to turn back. But years later Lisa had an even bigger challenge: ME - with no turning back possible. She experienced debilitating symptoms...

Thanks much, I'll look into that right now.

ah, thanks for catching that.

I have just published an interview with author and psychologist @Brian Hughes about his book "Psychology in Crisis" where we talk about the infamous PACE Trial. I contend that bad psychological science / scientists like PACE / Wessely are responsible for embedding a medical error in health care...

Thanks @oldtimer I'm still trying to wrap my head (and heart) around how Kelly Anne is able to forgive the doctor that will cause her early death. "Forgiveness is a gift you give yourself" sounds easier said than done. I originally worried about the length of some interviews, but soon...

Thanks @sb4 and @Daisy Here's the link to it on Podbean.

Hi all, I have published 3 more medical error interviews at iTunes, Spotify and Podbean. In episode #2 I interview Gregory from the UK about his many years of trying to get a Lyme diagnosis, and the subsequent cover up by his doctors of their missed diagnosis, turns a medical error into...

Totally concur @DokaGirl Our patient community has no resources, and very little health - it absurd that we have to do so much to get the govt to do their job - if only I was dictator!

Thanks @NelliePledge and @mariovitali I agree, persistence, or the current popular term 'grit', is a big factor. The other key factor is building a working relationship with the govt - not everyone appreciates or values its importance. People like working with people they like, it is human...

Thanks @Michiel Tack Feeling cautiously hopeful...time will tell.

Thanks @DokaGirl We anticipate she will confer with her staff and give them direction - we'll more than likely continue to work with the policy advisor we've been working with for months - but the federal election in the fall may shake things up / slow things down. The next step is to see...

Here is my report - posted on Millions Missing Canada Facebook page - after meeting with the Health Minister on Wed... (ETA whole document so folks don't have to access Facebook) Building Bridges and Laying Foundations Building relationships is hard! Getting the meeting with Minister...