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  1. Theresa

    Original Patient and Doctor handouts in the PACE trial

    I think some of them are available here under Trial Information https://www.qmul.ac.uk/wiph/centres/centre-for-psychiatry-and-mental-health/research/pace-trial/
  2. Theresa

    Has there ever been any evidence that health professionals are more represented among ME patients?

    Wessely makes a couple of references to evidence for this in his article "Old wine in new bottles" but I don't know what his references say, one of them is M Ramsay, not sure if this is the same Ramsay as is often discussed regarding ME.
  3. Theresa

    Dentistry; dental treatment

    This is what it says on the ME Association webpage: https://meassociation.org.uk/medical-matters/items/dental-white-amalgam-fillings-me-cfs/
  4. Theresa

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    In the second paragraph they probably mean Leonard Jason rather than Jason Leonard?
  5. Theresa

    Gentle(st) stretching routine

    There might be some useful ideas in this file also.
  6. Theresa

    Works of fiction where characters have ME/CFS

    There is a novel Falling through the World by Rachel Clarke published in 2012, I can't remember what I thought of it but it has positive reviews on Amazon.
  7. Theresa

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    The error is only in the abstract , the paper itself seems correct?
  8. Theresa

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I think either a copy of the new UK NICE guidelines or even just a reference to an online link for them would be good.
  9. Theresa

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Merged thread Could mitochondrial diseases cause delayed PEM? Hi, Sorry I don't know which area of the forum I should post this question in, but I just wanted to ask given the possibility that mitochondrial diseases could be misdiagnosed as ME if anybody knows whether the crashes in...
  10. Theresa

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    I agree about therapists sometimes providing unhelpful ideas but there really isn't any such thing as an accountant handing back or losing their qualifications.
  11. Theresa

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    I can't work out how to link it here but in the full text of the article a bit under the subheading "Therapists, techniques and principles in the mental training programme" there is a link to the supplementary material.
  12. Theresa

    Diagnosis of mast cell activation syndrome: a global “consensus-2”, 2020, Afrin et al

    According to Wikipedia Afrin suggests that MCAS could cause spontaneous human combustion, presumably there is no such thing and that cannot be a valid theory? I recall reading a very long article by him years ago on MCAS dymptoms and thinking it sounded like me until I got to the end and he...
  13. Theresa

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    One of the interviewees makes a good point about ME not being an invisible illness but that it is the lack of knowledge and acceptance making people feel invisible, there is not a test to diagnose the illness but it is often clear sufferers are ill, and there are many illnesses where sufferers...
  14. Theresa

    ME/CFS in UK medical textbooks (Psychiatry)

    Doctors are definitely too quick to diagnose sometimes or to assume psychological causes, however I think a diagnosis that says they don't know what is wrong is also likely to lead to disbelief of sufferers and make it impossible to take sick leave or claim disability so I don't know what the...
  15. Theresa

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    At least it refers to a Canadian psychiatrist having a position on mass hysteria that is based on emotion and ignorance, I would guess this is Shorter who deserves such criticism and that he is mistakenly referred to as a psychiatrist rather than a historian of psychiatry.
  16. Theresa

    Complex Regional Pain Syndrome (CRPS), what to do?

    Apologies, yes, it is the wrong URL, this is the one I meant to post: Complex regional pain syndrome and functional neurological disorders – time for reconciliation https://jnnp.bmj.com/content/90/5/608?rss=1&hootPostID=27c56b7434044fb5a6b10e468c08eb33
  17. Theresa

    Complex Regional Pain Syndrome (CRPS), what to do?

    This is a link to an article discussing a potential overlap between CRPS and FND, I don't know enough about either to judge whether the article is accurate or not but it might be helpful. Complex regional pain syndrome and functional neurological disorders – time for reconciliation...
  18. Theresa

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    I haven't been able to watch it apart from the beginning, but I don't think @Brian Hughes is correct to say PACE was based on a psychiatric model, there wasn't a single model but 4 different models being tested, fear avoidance and deconditioning were two separate models as was adaptive pacing...
  19. Theresa

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Here is an article on the same topic, but with a non-dualistic approach - "The neurology of the Cuban "sonic attacks" https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(19)30246-7/fulltext#
  20. Theresa

    EDS, hypermobility, and the link, if any, to ME/CFS

    This paper contains an interesting discussion of the evidence/lack of evidence for hEDS, POTS ,MCAS and the links between them https://link.springer.com/article/10.1007/s12016-019-08755-8
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