I think some of them are available here under Trial Information
https://www.qmul.ac.uk/wiph/centres/centre-for-psychiatry-and-mental-health/research/pace-trial/
Wessely makes a couple of references to evidence for this in his article "Old wine in new bottles" but I don't know what his references say, one of them is M Ramsay, not sure if this is the same Ramsay as is often discussed regarding ME.
There is a novel Falling through the World by Rachel Clarke published in 2012, I can't remember what I thought of it but it has positive reviews on Amazon.
Merged thread
Could mitochondrial diseases cause delayed PEM?
Hi,
Sorry I don't know which area of the forum I should post this question in, but I just wanted to ask given the possibility that mitochondrial diseases could be misdiagnosed as ME if anybody knows whether the crashes in...
I agree about therapists sometimes providing unhelpful ideas but there really isn't any such thing as an accountant handing back or losing their qualifications.
I can't work out how to link it here but in the full text of the article a bit under the subheading "Therapists, techniques and principles in the mental training programme" there is a link to the supplementary material.
According to Wikipedia Afrin suggests that MCAS could cause spontaneous human combustion, presumably there is no such thing and that cannot be a valid theory? I recall reading a very long article by him years ago on MCAS dymptoms and thinking it sounded like me until I got to the end and he...
One of the interviewees makes a good point about ME not being an invisible illness but that it is the lack of knowledge and acceptance making people feel invisible, there is not a test to diagnose the illness but it is often clear sufferers are ill, and there are many illnesses where sufferers...
Doctors are definitely too quick to diagnose sometimes or to assume psychological causes, however I think a diagnosis that says they don't know what is wrong is also likely to lead to disbelief of sufferers and make it impossible to take sick leave or claim disability so I don't know what the...
At least it refers to a Canadian psychiatrist having a position on mass hysteria that is based on emotion and ignorance, I would guess this is Shorter who deserves such criticism and that he is mistakenly referred to as a psychiatrist rather than a historian of psychiatry.
Apologies, yes, it is the wrong URL, this is the one I meant to post:
Complex regional pain syndrome and functional neurological disorders – time for reconciliation
https://jnnp.bmj.com/content/90/5/608?rss=1&hootPostID=27c56b7434044fb5a6b10e468c08eb33
This is a link to an article discussing a potential overlap between CRPS and FND, I don't know enough about either to judge whether the article is accurate or not but it might be helpful.
Complex regional pain syndrome and functional neurological disorders – time for reconciliation...
I haven't been able to watch it apart from the beginning, but I don't think @Brian Hughes is correct to say PACE was based on a psychiatric model, there wasn't a single model but 4 different models being tested, fear avoidance and deconditioning were two separate models as was adaptive pacing...
Here is an article on the same topic, but with a non-dualistic approach - "The neurology of the Cuban "sonic attacks"
https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(19)30246-7/fulltext#
This paper contains an interesting discussion of the evidence/lack of evidence for hEDS, POTS ,MCAS and the links between them
https://link.springer.com/article/10.1007/s12016-019-08755-8
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