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This is significant. For example if someone decided to write to their MP to ask the CCG about plans in response to NICE guidelines such a statement by the Health Secretary would possibly assist in getting some previously disinterested MPs to engage with ME/CFS as a serious issue.

I know we still have a long way to go. However for the first time I have felt confident enough to have tagged in my GP surgery into a Facebook post about International ME day and I have written to my CCG about the NiCe implementation statement and asked what their plans are.

In the UK the Alzheimer’s Society uses the forget me not. In their logo and fundraising

Oh I can think of a few gestures and expressions of my own to use Jan, I don’t need your brainwashed input

:banghead:

Maybe one of the benefits from the study will be any evidence they provide that other diagnoses really should be thoroughly checked for.

Can relate @Peter Trewhitt it took me a long time multiple rewrites. Harder ti be succinct

Wherever there is an opportunity to try to exert influence…..

Sadly there’s a few of these studies based on tired animals. :banghead:

Szia fellow people with ME in Hungary. I have what’s called gradual onset ME and had been working 30 years when I finally got ME diagnosis and was not able to keep working.. I enjoy being in contact with people with ME from my country and around the world. Individually advocacy actions we can...

@PhysiosforME another who would benefit from some education

Interesting because I’ve seen quite a few people with ME talk about internal tremors and chest pain pre pandemic. If someone already has moderate/severe ME before catching covid possibly any new symptoms are easier to attribute to covid. But if your ME is milder end of the spectrum you are...

I wonder if there’s any likelihood of people with a good understanding of ME, the likes of Keith Geraghty or Leonard Jason or others pursuing this area?

There are email addresses linked within the paper

Presumably reference to DSHC is dept of Health and social care Reads like they didn’t actually discuss the Nice service spec which I consider a topic they need to keep on top of

Post activity fatigue also known as post exertional malaise……….

Target has been reached

Thanks all I’ll probably try to speak to a GP about it

I appear to have a combination of hayfever and PEM I’ve had pretty mild hayfever occasionally in the past. Nothing like this headache and cough though. I moved in last couple of years so I’ve got different trees in my garden. Now have a Maple which appears to have its flowers currently and...

Graded exposure therapy isn’t that a Freudian slip just letting out that they really do think it’s some kind of mental block like fear of flying or spiders that can be treated by gradual exposure.