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And so it begins.. I notice likes from both Michael Sharpe and the LP-coach Live Landmark :banghead:

I have suffered from ME for over 20 years. It was first when Fluge/Mella published their small Rituximab-trial back in 2011 that I started to develop a sincere hope for a better life - to receive a cure, or at least treatments, sometime in the future. The news today are disheartening indeed...

Wasn't the dosages of Rituximab in the phase III trial a tad smaller than in the previous ones? Don't know what importance that has, though.

Statement from Invest in ME For us we have invited the Haukeland team to Norwich to discuss the way forward. We remain positive. Another setback, another day. We have already been in discussion with our advisors and with the Norwegian team and we will meet to clarify the best way forward in...

Blogpost from doctor and Rituximab-respondent Maria Gjerpe concerning these news Rituximabstudien - ikke mulig å påvise effekt google translation Rituximab study - unable to detect effect Edit to add: The blogpost has a picture with a slide from Mella's lecture from today. It is in...

All I know is there are plans of further studies from the research team at Haukeland. Don't know any details though.

As far as I know this was said by Mella today at the conference.

News are spreading now in several places, so it is official.. The effect of Rituximab in the trial RituxME is negative. This is discouraging news. Warms hugs to everyone. We will keep on looking for treatments. We are not giving up!

No news yet from the seminar, but just heard it is being filmed, so those of us who can't attend will get a chance to see it eventually. :)

Here is a picture at least. Seems to be very well attended. You can spot Mella and Hornig at the podium.

It is starting now. Am not attending, but am keeping an eye out for updates from others and will share here if I see anything.

OMF is also looking for more volunteers for translations into Polish. Thread title is edited to add Polish.

The Norwegian paediatrician professor Kristian Sommerfelt described his young ME-patients as incredibly brave. Maybe a tad off-thread but I also really liked it when doctor Katarina Lien (doing a PhD on ME and exercise) introduced herself in a lecture with: I am an ME-researcher, and proud of it!

Here is the blog post: Trial by Error: My brief encounter with professor Crawley ETA: Discussion Thread on blogpost

Open Medicine Foundation's monthly newsletters are being translated into several languages and are reaching a lot of people. They are looking for a new volunteer for translations into Japanese. Here is a collection of the translations into different languages, so you can have a look and see...

Ron Davis has cancelled the trip, but doctor Katarina Lien will take his place. She is working on a PhD on ME and exercise intolerance measured with ergospirometry-testing. @Sasha As far as I know, there won't be live tweeting, but people are working on making live streaming possible. Let's...

Agree. It is highlighted in the "about" section, but perhaps it could have been even more clear: This is a collection of self reported true stories by ME/CFS patients who have experienced the Lightning Process. Please share these stories widely to raise awareness and protect others.

Ah no, this will be a collection of stories for all those where it DIDN'T work well. Will make that more clear in the first post.

A facebookpage has just been created called True Stories About Lightning Process This is a place where ME-patients can share the other side of LP, what turned out to be the grim reality for many. Have an experience with LP you think others should know about? Here is a platform where you can...

David Tuller was present. Will be a blog post tomorrow :woot: Edit to add: You guys were way ahead of me in this thread, which I should have read more thoroughly before posting.