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Haven't heard much report from the seminar, so don't know if any news regarding RituxME were shared. Apparently there is still some time left until the study is published. ETA - but here is a nice report from the rehabilitation center who took part in organising the seminar (nothing about...

Sorry @Samuel The poll's limit is ten options and now we have already started voting.. Not sure how to include your suggestion .. :oops: Perhaps I should have waited a few more days to see if others wanted to join in with propositions, but I was at the same time eager to move this a bit forward..

Poll up. Let's vote! :)

Front news at the Norwegian site Forskningno (Research.no) who provides news on research and science for a general audience. The article is mainly based on a radio segment from Sweden about the PACE-trial, the re-analysis and an interview with dr. Per Julin from the ME-ward at Stora Sköndal...

70% And an update (also sent as e-mail to donators) Your generosity has helped me close in on my crowdfunding goal, with two weeks left to go. I plan to send everyone an individual thank-you note once the campaign is over. For now, I hope a group thanks will suffice!--David

Two Interview Podcasts, and "Conflict of Interest"

It seems like this is the most popular suggestion. But there were several versions of it, and if we kept all of them for the poll, we'd lose other suggestions. How about we see if Justice4ME wins the poll, and then continue the debate whether other versions of the slogan could work better?

Yes, I think ten options is plenty anyway, as long as most agree with how I narrowed it down. I don't think a hashtag like this will ever trend, but IF it catches on among us patients and supporters, and is used over time when we donate, I hope it might reflect how many we actually are...

Yes, that is what I tried at first. But turned out polls here have maximum ten answer options, therefore I reduced our list :-)

In order to make a poll, we need to narrow down our list to 10 suggestions or fewer. I've tried to make a new list by removing the most similar suggestions and went from this list: #RealScience4pwME #ExploreMEScience #RealSCIENCEforME #donate4MEScience #biosci4ME #ActualScience #MEScience...

I googled "isometric yoga" and found this study from two of the same researchers from 2014. Isometric yoga improves the fatigue and pain of patients with chronic fatigue syndrome who are resistant to conventional therapy: a randomised, controller trial This trial enrolled 30 patients with CFS...

Elling Ulvestad is a specialist in immunology and transfusion medicine, head of the Department of Microbiology at Haukeland University Hospital and professor at the Department of Clinical Science at University of Bergen. He has written a text for The Norwegian Medical Association titled...

I like it as a slogan. You think it would be ok to adopt it this use?

Here are the suggestions so far for a hashtag/slogan to use when replying to the biopsychosocio-crowd with a donation to the ME-cause. Thank you for all the ideas and contributions! Any other suggestions anyone? #RealScience4pwME #ExploreMEScience #RealSCIENCEforME #donate4MEScience #biosci4ME...

Yes. Wyller is known for promoting the view that is doesn't really matter whether you use strict criteria or not. And now he has done a couple of studies he can quote himself from in order to prove it.

I wonder how much money has been spent in total on the NorCapital study and these publications and what really has come out of it.. Now Wyller is doing a trial on music therapy as treatment for ME. He wants to do an LP-study as well, but it hasn't been funded yet.

BMJ Paediatrics open: Systemic exertion intolerance disease diagnostic criteria applied on an adolescent chronic fatigue syndrome cohort: evaluation of subgroup differences and prognostic utility Objective Existing case definitions for chronic fatigue syndrome (CFS) all have disputed validity...

Dear @Kafka I am so sorry to hear about your daughter. Perhaps Emily Collingridge's book "Severe ME/CFS - a guide to living" might be of interest/use? Some of the info is most for UK patients, but a lot can also be applied to patients in other countries. As far as I know the only place to get...

New Science Wednesday Post from OMF. Do infections lead to lasting changes in immune or metabolic function that lead to symptoms, or is the pathogen still present? This #OMFScienceWednesday, OMF discusses recently funded research into addressing this central question in ME/CFS. Post on OMF's...

Added to the list. #RealScience4pwME #ExploreMEScience #RealSCIENCEforME #donate4MEScience #biosci4ME #ActualScience #MEScience #4MEScience #GoFundMEScience #MEScienceWorks #MyalgicEncephaloAccuracy #IDonatedToMEScience #Justice4ME #JusticeForME #JustScience #JustScience4ME