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It took me quite a while to find the location where all versions of the protocol are collected: https://www.journalslibrary.nihr.ac.uk/programmes/hta/14192109#/ Edit: A summary of all changes to the protocol can be found here, pp. 36-42 https://njl-admin.nihr.ac.uk/document/download/2029706...

Stop criteria published protocol, 22 Feb 2018, Trials volume 19, Article number: 136 (2018), https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2500-3

I assume also this? https://s4me.info/threads/the-norwegian-me-associations-report-on-severe-me.10140/

...and still updating... Editorial Notes http://www.isrctn.com/ISRCTN18020851

I saw this only now. In addition to all already pointed to in the previous comments I found the part about "possible benefits and risks of participating" very strange. What are possible benefits and risks of participating? (And if FITNET-NHS is not effective?) Also the supposed risks seem...

Irony? https://twitter.com/CochraneUK/status/1168170398976004097 Guess who else retweeted this.

Anyone could help me understand this example? Are there machines for data collection that cannot be repaired or new ones would be too expensive, so that a broken machine would require utterly different methods of data collection or the collection of other data?

The affected egos surely could help each other with a bit CBT? On a more serious note, if they just wanted to be good and helpful clinicians, therapists or researchers, they wouldn't have to be afraid of having nothing to apply their professional education to. There is a lot of urgent stuff to...

A propos, Prof Munafo is on Twitter: https://twitter.com/MarcusMunafo

Authors' affiliations: https://www.bmj.com/content/366/bmj.l4898.full?ijkey=gzAdEdyR713TWzf&keytype=ref#

(Only able to skim this and related threads and now just slightly amended an older draft which might fit into this thread -- if not, please feel free to move.) Again, I think in order to assess symptoms and build hypotheses on underlying processes, it's important to distinguish between...

In my case what I perceived as exercise-induced muscle stiffness and weakness was assessed as motor fatigue only after I had provided a video documenting my temporary strange gait. My neurologist as well as diverse physiotherapists even think my occasional flares of muscle spasms in other parts...

From his university's website: Wow. The origins of health and disease / Hyland, Michael E.. - Cambridge : Cambridge University Press, 2011 He seems to know it all. TOC: http://www.gbv.de/dms/bowker/toc/9780521719704.pdf The author on other threads...

https://twitter.com/Healthy_Control/status/1163441460819234816 https://twitter.com/some_wise/status/1164332943268966401 https://twitter.com/Healthy_Control/status/1163802083847487489 https://twitter.com/Healthy_Control/status/1163803297783975936 Thank you @Caroline Struthers

I think both fatiguability and PEM could be measured. IMO it's important to distinguish between the two. Also it could be helpful to distinguish between studying movement patterns as patterns of 'fatigued'/ specifically altered/ impaired movements on the one hand and behavioral patterns (how...

A very quick search for studies on post-concussion + both investigators delivered these 2 results (only Sanjay Kumar as co-author): KUMAR, S. , RAO, S. L., NAIR, R. G., PILLAI, S. , CHANDRAMOULI, B. A. and SUBBAKRISHNA, D. K. (2005), Sensory gating impairment in development of post‐concussive...

Just saw that this hasn't been posted yet: "On #severeME day here is a song about my struggle with ME: https://youtu.be/ckBYXPwNaR0 " 'Holding on' by Robert Saunders A beautiful song, ME-friendly audio & video (just displaying the lyrics, white on black)...

Another important and wonderful article correcting some media campaigners' spin -- thank you, @dave30th Are you aware that you are not only "a man called David Tuller" but you also write for a "blog called Virology"? It's specified as a "well-read blog" at least. (Anyway, I like how you write...

Not read yet, not from the Lurija Instiute either, but as they discuss objective measures of fatigue and fatiguability, I just leave it here: Linnhoff, S., Fiene, M., Heinze, H. J., & Zaehle, T. (2019). Cognitive Fatigue in Multiple Sclerosis: An Objective Approach to Diagnosis and Treatment...

https://twitter.com/EricTopol/status/1161003716448624640 (Not sure whether this deserves its own thread.) Edit: Maynard, Matt/ Oxman, Andrew/ Pullin, Nicola et al (2019), Key concepts for making informed choices, Nature, vol 572 (15 Aug 2019)...