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  1. MSEsperanza

    'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

    If they haven't understood yet, they could read it again -- and raise concerns or aks questions in an open-minded manner.
  2. MSEsperanza

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    I realize it's the Observer and not the Guardian, but as they seem to be a joint publication, the editors in charge might want make themselves aware of the corrigendum Guardian's Ian Sample added to a podcast on the same topic: "in the podcast we talk about a paper on CFS interventions that...
  3. MSEsperanza

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Apologies for just popping in. Most probably already said by others -- about how the accuser repsonds to sientists' criticism on social media: Edited to add: Or to more widely acknowledged campaigners:
  4. MSEsperanza

    BBC radio programme on diagnostic names 12/07/2019

    Episode 3: „What‘s in a Label?“, BBC Radio 4 (D for Diagnosis) How accurate is a mental health diagnosis? Claudia Hammond reports on the value of a label and finds out why some mental health practitioners just refuse to give them. (ME / CFS not mentioned in the text, not able to listen))...
  5. MSEsperanza

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Is the questionnaire similar to this 'Brainstem Disability Index'? Table 1 Brainstem Disability Index The following 20 symptoms may be referable to pathology at the level of the brainstem. Please indicate yes or no whether your child has any of the following symptoms on a recurring or...
  6. MSEsperanza

    Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome (2016) Sandler, C; Llloyd, A; Barry, B

    Stumbled across this study and thought it could be a bad example of doing a study using accelerometers? Just leave it here for others to judge. For Andrew Lloyd see e.g. https://www.s4me.info/threads/david-tuller-trial-by-error-a-post-about-andrew-lloyd.3349/ A similiar study by almost the...
  7. MSEsperanza

    Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome (2016) Sandler, C; Llloyd, A; Barry, B

    Sandler, C; Llloyd, A Barry, B (2016), Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome, Medicine & Science in Sports & Exercise: October 2016 - Volume 48 - Issue 10 - p 1875–1885 doi: 10.1249/MSS.0000000000000983 /...
  8. MSEsperanza

    The PACE trial video series by A Broken Battery

    Well, I was amazed at the video's succinctness... ;)
  9. MSEsperanza

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    https://twitter.com/ElahFeder/status/1155909816080093185
  10. MSEsperanza

    The PACE trial video series by A Broken Battery

    Thank you @Adam pwme . As listening to and watching videos for me is a much more demanding activity than reading, I am particularly grateful that you provide a transcript here as well as on youtube. Very much appreciated!
  11. MSEsperanza

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    A man called David Tuller just published an article on virology blog about this: http://www.virology.ws/2019/07/29/trial-by-error-more-get-drivel-from-australia/
  12. MSEsperanza

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    from: Tom Chivers, Does psychology have a conflict-of-interest problem? https://www.nature.com/articles/d41586-019-02041-5
  13. MSEsperanza

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Letters to the editor Letters for publication should be sent to these addresses. The sender’s full postal address and phone number are required, for verification only: Guardian: guardian.letters@theguardian.com Observer: observer.letters@observer.co.uk Corrections and clarifications of...
  14. MSEsperanza

    The HANDI Working Group

    Their interests: "A committment to promoting effective non-drug treatments" https://www.racgp.org.au/clinical-resources/clinical-guidelines/handbook-of-non-drug-interventions-(handi)/about-handi/what-is-the-handi-project The authors...
  15. MSEsperanza

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    There seems to be a problem with their evidence assessment system. GET was rated with the highest evidence level (NHMRC level of evidence I ) "The RAGCP currently use the NHMRC levels of evidence and in the future we will move to a GRADE process."...
  16. MSEsperanza

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    From the transcript (T. Chalder): Chalder did a trial with I. Marks and Wessely on cognitive behavior therapy for chronic fatigue syndrome (1997): https://www.ncbi.nlm.nih.gov/pubmed/9054791 see also...
  17. MSEsperanza

    “Graded exercise therapy: Chronic fatigue syndrome” by The HANDI Working Group (2019)

    The corresponding author, P. Glasziou, is the co-author, together with the three principal investigators of the PACE trial, of the withdrawn Cochrane individual patient data review (protocol) on exercise therapy for CFS...
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