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I seem to have misrepresented the listed studies by only quoting the abstracts of the studies that used fMRI. Actually I find the earlier papers examining gait more relevant, see the papers I posted (again) here...

Eleonora Gentile, Katia Ricci, Marianna Delussi, Filippo Brighina, and Marina de Tommaso, “Motor Cortex Function in Fibromyalgia: A Study by Functional Near-Infrared Spectroscopy,” Pain Research and Treatment, vol. 2019, https://doi.org/10.1155/2019/2623161...

I find this puzzling, too. I can't understand how endorsing Dr. Myhill and at the same time referring to EBM to criticize ME research could add up. Also, on the foundation's website, Dr. Myhill is listed in the category "Scientists involved in biomedical research" which to me seems to suggest...

https://twitter.com/mepfuk/status/1150718868400328704

I think he isn't, it's just how Google translates Fredericia

https://twitter.com/LeneCch/status/1148902391250608128 https://fredericiaavisen.dk/stig-gerdes-sidste-laegegerning/ Google translate: https://translate.google.com/translate?hl=de&sl=auto&tl=en&u=https://fredericiaavisen.dk/stig-gerdes-sidste-laegegerning/

Thanks to the ME Association for doing this. Why not make this optional? Isn't it possible to report pwME's stories anonymized? I think being exposed on newspapers and social media with their real identity will unnecessarily stress people.

I know it's not good but I thought being a bit ad hominem today could help me digest that some people still like to think the SMILE trial was a properly designed and conducted randomised controlled trial.

Corrected version of the trial paper: https://adc.bmj.com/content/103/2/155 Editor's note on the corrections (2019): https://adc.bmj.com/content/early/2019/07/11/archdischild-2017-313375ednote?fbclid=IwAR3-LBW7tdYPwycVC0p0ozmkjdT6bzMx9nz0XVrrfPk97Rp59e1vafba3P0 Archived version of the original...

Since I am not entirely sure about my ME diagnosis, I don't participate in these interesting ME polls anymore. But I thought I let you know what I was wondering about in another thread: Might motion sickness or nausea of pregnancy be comparable to some of the gastrointestinal issues pwME...

From the editor's note; Would be interesting to see these reviews as well as the "further unpublished work" that "suggests [school attendance using school records] highly correlated with the self report measure we used" and "could have provided an objective outcome" if only we had the...

If I understood this correctly and it means funding for ME research, I find this encouraging:

Just have enjoyed comparing the number of retweets and likes... (8 retwets, 12 likes) https://twitter.com/MedHums_BMJ/status/1133753380210450433 (21 retweets, 48 likes in 2 days) https://twitter.com/MedHums_BMJ/status/1146720589413064704 (Didn't see a bmj medical humanities tweet on...

Even with somewhat interested and unerstanding doctors, also in clinics, I rather experienced that they didn't find such reviews helpful. And for the less understanding doctors reviews of this sort only reassured them that all 'proof' of biomedical etiology is unsound and exeggerated. In their...

https://twitter.com/MedHums_BMJ/status/1146720589413064704

Blog article now also published in The BMJ Opinion: https://blogs.bmj.com/bmj/2019/06/20/hilda-bastian-should-we-trust-meta-analyses-with-meta-conflicts-of-interest/ Edited to add: It's an adapted version of the original blog article. The blog itself was updated on April 29th to add...

https://qz.com/1649011/researcher-behind-smartphone-horns-study-sells-posture-pillows/

New leaflet from EUROMENE about their work. Includes short info on 'What is ME?', diagnosis and prognosis. http://www.euromene.eu/workinggroups/Euromene.pdf http://www.euromene.eu/

Maybe not exactly the same but very similar?

Hm, interesting. If I unterstand correctly the same group previously found that people with MS related fatigue didn't benefit more from energy conservation management (ECM) compared to an 'information-only control condition'. (I couldn't find information in the abstract whether people benefited...