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I was not able to read all the posts. Just my quick (by my standards) thoughts on whether protesting or not. I think the scope document could be more important at the moment than some/ many problematic appointees. @adambeyoncelowe said on the other thread that NICE fixed the false phrasings...

An instance of "my- likes- do-not-mean-I-like-that". Not at all. Actually, more such NICE instances here today. (can't find the puke emoticon) Edit: Nevertheless: Thank you for trying. Also nevertheless: Thank you to all other forum members and staff who have been and will be fighting for us...

I found the following juxtapositions of excerpts of the (I think) latest Cochrane review (http://cochranelibrary-wiley.com/doi/10.1002/14651858.CD003200.pub7/full) in my draft folder and just leave this here in case it might be of interest for anyone. (I thought it showed some contradictory...

Interesting to see that they used some objective measures for motor function, but where did you see an attempt "to work harder on sub-grouping movement problems", @Esther12 ? I am afraid that their underlying concept might be just a MUS concept confined to functional motor symtoms. I only...

Could it be that the concept of the conference is a bit muddled or is it my understanding of the distinct meanings of "treatment resistance" which is muddled? Some parts of the programm seem to me to address "treatment resistance" rather in the sense of a failure to respond to treatment, not in...

Did your doctor instruct you how to take the Prednisolone? This is no advice, and as you know, side effects can occur to everyone differently, and also each ME is different. And in case you experience severe side-effects or such of which you are unsure whether they are serious or not, you will...

[Apologies, don't want to interrupt the discussion] When I understood @Luther Blissett properly, youtube will automatically generate subtitles when a video is put on accordingly. Youtube's features also will extract the subtitles to a transcript. Afterwards, you just have to copy the...

Postscript to LP coaches, journalists and researchers who think pwME's online activity could indicate their activity in general I usually write my posts offline in several short episodes over several days. I could not go outside and meet friends instead or even do very gentle exercise lasting...

Is the livestream link on the facebook page only accessible for fb Hope 4 ME & Fibro fb group members? When I follow the link... https://t.co/5pO6a2wiNE ...I get this message: On the Hope 4 ME & Fibro fb events page the event is announced but I see no link/ announcement of the livestream...

Thanks to all involved!

@Jonathan Edwards, each time you write about how you handled specific medical problems and that this was how it was usually done in your professional setting, I think: Yeah, that's how it should be! But what did you do when you were not sure about a diagnosis? Or did it never happen that you...

Maybe not. That's why I put the why in paranthesis. But I still think the questions that first needed to be answered is whether there generally is a gap between the medical knowledge about women and the medical knowledge about men and whether it is really known in which medical conditions sex...

This is what Merriam-Webster ( from @TiredSam's links) says: plural: aspirin or aspirins

Apologies -- the paper I found does not contain the data I thought it would, only the references to other papers which should: Biology of Sex Differences20167 (Suppl 1) :44 https://doi.org/10.1186/s13293-016-0093-7 Published: 14 October 2016...

[Edit: Apologies -- the paper I found does not contain the data I thought it would, only the references to other papers which should. See...

Apart from that... ...this... ....doesn't say anything but how unlogical Landmark's reasoning is. It is not known who these people are that are active on the forums (sufferers? familiy? carers?) and it is not known what "activity” means (liking a comment?) nor how many pwME are not even...

:thumbup: :thumbup: :emoji_clap::emoji_clap::emoji_clap:

Sorry, I spotted this when I edited the comment for an other correction but siesta was overdue so I left it like it was. Actually, I was meaning to say that even though the number of the researchers criticizing PACE and related trials might be relatively small, there is substantial...

As you ( @Graham ) pointed out in your first e-mail (or letter?) there were and are comments - or don't you think the mentioned critics are researchers? My suggestion would be rather something like this (apologies for the bad wording): "Sadly, despite the scientifically sound criticisms of the...

Perhaps you would like to emphasize again how "his own" University is involved and continues to be involved in bad science? @Graham @Sasha