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This seems like good news :)

Merged thread Worrying tweets from Jane Colby on Tymes Trust and social workers refusing to talk to them

Seems Charles Shepherd really tried. Michael Sharpe, one of the authors of the widely discredited PACE trial (https://www.meassociation.org.uk/…/me-awareness-the-pace-t…/) has expressed his thoughts on ME/CFS and internet activism in The Guardian. His comments imply that individuals with ME...

he (Tuller) was instrumental in persuading the respected science journal Cochrane Database of Systematic Reviews to withdraw a paper that looked at eight randomised controlled studies of exercise therapy for ME/CFS. Sharpe says that the Cochrane editor “wilted badly… under direct pressure” from...

The news site ABC Nyheter delivers once again with another article on ME, referring to the report on severe ME from the Norwegian ME Association. They've interviewed a 31 year old woman with severe ME. She says it's only thanks to her boyfriend and her mother that she has had some help. Next to...

This is a comment from the New Statesman online editor Hettie O´Brien from July 19th. I don't think it has been shared in the forum, and thought it was an interesting read. Nothing new though, but it's good to see critical thoughts on CBT and mindfulness from the media. In a report published...

Towards the end she talks very warmly of MEAction, Solve ME/CFS and OMF and recommend patients and carers to get information from them. She also talks about Invest in ME as an example of good things happening internationally.

Yes. Some of these stories are quite uncomfortable reading and one could hope outsiders discover there are some very problematic aspects with "functional disorders" and how they are dealt with: This could be read as rather critical to the advice that comes following being diagnosed with a...

The title is from one of the interviews with a parent Mie’s parents had a strong conviction that no sufficient explanation for their child’s symptoms had been provided. Both parents expressed frustration with the medical examinations that had been performed, as they did not feel that a possible...

Is there any online information about recruitment for the study?

Yet another article about the report from ABCNyheter. This time as a an editor's comment by Kathleen Buer where she asks people to stop judging those who are sick as it may lead to worse prognosis. Low status of certain illnesses leads to less research, lack of treatments and as a consequence a...

Trial By Error blog post by David Tuller: Our Exchange with BMJ Journal about "Correction" of LP Study Last Thursday, Professor Racaniello and I received an e-mail from Dr Brown. He alerted us to the news that a “corrected” version of the Lightning Process study had just been posted, along with...

Retraction Watch has mentioned it in their weekly news summary Weekend reads: Researcher resigns following questions about ties to China; grad student's suicide sparks misconducts investigation; study of chronic fatigue syndrome corrected “BMJ policy requires prospective registration of...

BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...

BMJ has "corrected" the Lightning Process study but has allowed its conclusions to stand, as far as I can tell. I will have more to say about this. Apparently, the authors have convinced the journal that the outcome swapping had nothing to do with the fact that the revised primary outcome had...

Yes, that sums it up. Or, as senior doctor at the Competence Service, Ingrid Helland, said in an article last year about the petition (translated hastily by me): - We try as a competence service to manoeuvre through all research from this field, including biomedical research. But we get...

New blog post from Nina E. Steinkopf. She has sent a letter to the Minister of Health and Care Services Bent Høie whom she met with in March when she handed over the petition with over 7 000 signatures asking for the removal of the management for the national competence service for CFS/ME. The...

Jonas Bergquist, maybe? Uppsala University's new research centre around ME will be the third in the world after the universities in Stanford and Harvard. All projects are funded by the Open Medicine Foundation, a research foundation in the United States based on private donations. In Uppsala...