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Who made the video I wonder it's the same one in both articles... it's not great. It's the only article I think I've ever seen though (I only read the Mirror one as that's what my family read so the Bristol one may not say it) that says that "symptoms can vary from day to day & even within a...

Yes there are a fair few disagreements over here about the history too @Wilhelmina Jenkins so you may well be right.

I'd not read that I don't think @obeat thanks it looks great & thks as always to the author too :)

Yes @MSEsperanza that is exactly the post I was thinking of! :) brilliant thanks. Precisely. It really strikes me as unhelpful when advocates/sufferers blog & promote things that can't be proven, all their hard work can so easily be turned against us. As I said in my earlier post all this...

yes that's what I meant... people think it's helpful but it's not

Never mind 'like' where is the 'love' button when you need it? Seeing her lying there on her bed in the EU chamber moved me to tears. Thank you Evelien & well done.

Since when does the word 'degenerative' "sound worse than it is"? I feel I can say for certain that anyone who is experiencing a degenerative condition finds that it 'is' a very great deal worse than the word can possibly convey. Orwell would be proud ETA well not Orwell himself obviously but...

That the 'real versus not real', & 'physical versus mental' arguments are red herrings - and falling into the trap of saying 'it's real - it's not all in our heads' isn't nearly as helpful an argument as it appears to be. ETA This is such a good idea @Andy

All of the above, but also where we are actually at in terms of what we know research-wise... A lot of advocates, it seems to me, have read quite a lot of biomedical research which isn't particularly reliable/high quality... I cant think how to describe what i mean succinctly, but they up-play...

How are you doing @Sallycatherineharris ? I know it's only been a few days but i'm thinkin of you.

I'm not surprised you get anxious at the thought of going back there! It makes me go cold just thinkin about it & I haven't lived through it. I just cant imagine. I wanted to add the hug emoji here but it looks to 'smiley' to be appropriate somehow. But I'm sending a hug to you (if welcome I...

That's interesting @Trish especially since EMDR is NICE approved for treatment of PTSD I believe.

I'm sorry you are experiencing these awful symptoms @Sallycatherineharris I do hope the nortriptyline will help, it sounds hellish God :eek: that sounds horrific.

indeed. And the hideous irony is that these things are the very things that many of the staff at these clinics - certainly their BPS 'grand masters' - would consider to be 'enabling'/indulging so called 'secondary gains' & therefore are sometimes refused as being a 'barrier to recovery'...