Good point. I know i'm in the minority here, but I would recommend de-emphasizing PEM as a critical inclusion criteria. I believe a lot of folks say that PEM is the cornerstone MECFS symptom, but for the several years I was mild--say through mid-last year, I very rarely got what I think is PEM...
I used a credit card... maybe Zuck is going on a shopping spree right now.
Looks like they raised about USD 30,000, which doesn’t seem like a lot...times 6 it’s 180,000....could pay for a lab machine or a couple of years of a technician.
7 million is for all the charities in the world combined, not just for OMF. That’s why one needs to donate at the exact time listed or the money goes to save the whales or something else.
[N.B. Not against saving whales]
#TripleTuesdayOMF - Giving Tuesday Special Facebook Matching Gift
We’d like to highlight a unique opportunity to have your donation to OMF 6x matched on International Giving Tuesday, starting tomorrow (Tuesday, December 3) at 5 AM Pacific / 8 AM Eastern / 1 PM London.
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The knee arthritis mention was absolutely not meant to be a personal call out— it was random. Maybe I should have said knee osteoarthritis— apologies if my words were misconstrued.
Well one difference between MECFS and other bad ones is that I can watch an hour of news on TV (I live in the US)...
I agree with @debored13 here. I disagree with the approach of this exercise’s “cautionary principle”. Cautionary Principle might be OK for knee arthritis, but not good for a serious disease where you get worse over time. I believe aggressive approaches to treatment— with informed consent—are...
Yup, IMO that’s why these people who spend all their time on twitter saying that they have the only “true disease” because they were infected by Enterovirus XYZ sub-strain 321 are not helping anyone, including themselves.
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