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  1. NelliePledge

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    Someone should highlight Pinkers intervention to Ron Tomkins possibly discussion between fellow Harvard people may be useful.
  2. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Yes I could be reading too much into it. It’s just the Kelland Reuter’s article whole point was the Cochrane issue so it struck me that the only new point in the whole thing was that one about Cochrane so possibly using similar tactics. Would be great if it backfired
  3. NelliePledge

    The PACE trial video series by A Broken Battery

    Was going to share it on local Facebook group @Adam pwme but someone beat me to it :thumbup:
  4. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    I don’t think it’s trying too hard to argue anything it’s just rehashed old material with that snippet about the Cochrane editor backtracking on the previous guy’s decision - which in my opinion is the whole point of it.
  5. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    I see Sharpe gives a special mention for online forums where the activists hatch their dastardly campaigns :thumbup:
  6. NelliePledge

    Bedridden For 11yrs And Cured Himself

    I wonder if he would be interested in getting involved with one of the ME research groups
  7. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    so Presumably the whole purpose of the article is to get out that point about the Cochrane review and the new editor overturning the decision- Sharpe must think by making it known she’s going to overturn it it makes it harder for her to reconsider that.......maybe she isn’t fully on board yet
  8. NelliePledge

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    Bubble and squeak article - It seems like a lot of left over stuff mashed together fried up and served again.
  9. NelliePledge

    More PACE trial data released

    These people just can’t see the irony
  10. NelliePledge

    EFT (Emotional Freedom Technique)...coming to a CFS clinic near you? & a possible advocacy opportunity?

    I’d like to be emotionally free from all this tripe they keep promoting
  11. NelliePledge

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    May be a ridiculous question but If the purine metabolite is reduced does that mean there’s also more purine still going round in the system? On my postage stamp understanding it is the purine that causes the problems & pain in gout. Could this be causing pain in ME.
  12. NelliePledge

    ‘I can hardly breathe’: Exploring the parental experience of having a child with a functional disorder, 2019, Hulgaard et al

    I can hardly breathe. Or in more colloquial English. I’m gobsmacked at the tripe they’re coming out with.
  13. NelliePledge

    Why is The Guardian's coverage on ME/CFS so poor?

    Don’t know about all the personalities involved. But SMC come from a group with origins (not currently) in left wing faction, the Guardian is what passes for left leaning in U.K. press. Also left leanings/intellectual side of the Guardian make it supportive of psychology which seems in the...
  14. NelliePledge

    Use of trackers for Parkinson’s patients

    https://www.bbc.co.uk/news/uk-england-devon-49075253 BBC article showing that trackers are being looked at for ongoing monitoring of Parkinson’s patients Surely developments like this have to make it much harder for any further research into ME even psychological to ignore using activity...
  15. NelliePledge

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Chalder AND Moss Morriss. I bow down to their combined authority and genius. Surely this must be the answer to all that ails us unhelpful believers. I shall have a word with myself and go forth and reduce my persistent symptoms
  16. NelliePledge

    BBC Sport: Channel swimmer Beth French on jellyfish, living with ME and her autistic son

    Oh dear heat induced befuddlement made me misread that - ie not didn’t register - and I had in mind the other thread about people recovering after accidents.
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