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At my basic patient level I’ve wondered about gait and ME since it is looked at in MS Parkinson’s there must be a case for investigating. I can walk normally on a good day when I’m just starting to use up my energy. When my energy is low I am noticeably more wobbly, the weakness seems around...

Obviously school holidays now but I’m wondering if you’ve been getting any response from primary/secondary teachers about the articles?

Yes it seems likely another one to add to the list ETA isn’t perfectionism another one that’s been used in CFS Cosmo quizzes , I mean psych research, too. I seem to remember wondering how that fits with malingering.

PACE isn’t appropriate for AI it is appropriate for GT. Genuine tripe. Sorry couldn’t resist. :sneaky:

Ministers are far too important to be held accountable for the way public sector organisations are run and put into practice the government policies come up with by - err Ministers ;). It’s all the fault of the bureaucrats.

I do this. I don’t like using Amazon but shopping is my worst enemy so I do order quite a bit from them to avoid trailing off to physical shops. I don’t think it’s a vast amount but at least it is something. I chose ME Association. I don’t agree with the way they do some things but they do...

One Carol Monaghan and fellow MPs could take forward with department of Health.

How can they be ignorant of the impact of GET with Julia Newton as one of the authors. Ignoring it as an issue is not a good look.

Will they have the cheek to try “the dog ate my homework”. I wouldn’t put it past them.

Now possibly Ex friend???

If there are things that physios can do to help people with Parkinson’s MS etc presumably - with great care not to put people in PEM, and taking account of severity- some of it might be helpful for people with ME, Workwell approach is based on physio isn’t it??

I think Chris Ponting is doing a great job trying to get some useful research going. Credit to him and Nina Muirhead for actually doing stuff. Countess of Mar for getting involved as well. Trying to work on influencing MRC from within. Unfortunately with those who are hangovers like Murphy...

Grovelling apologies for being puerile about part of your excellent post but when I read the last sentence all I could hear in my head was Ass Mode.

Well done @ScottTriGuy

Maybe it’s me but I can’t see where to register in order to be able to sign. Poorly designed web page

Honest question- how normal is it for papers to remain live with this level of correction? If the corrections are much more extensive than usual can anyone reasonably argue that this paper has any credibility whatsoever.

Great article @Russell Fleming and thanks for all you do at ME Association.

Isn’t there already a discussion about this?

I like @Kitty s GenoME. Simple and effective

On the same lines I use physio hot/cold gel packs which I keep in the freezer in the summer. On warm nights I wrap one or more up in scarves and place in strategic locations like the back of my neck/against torso to help keep my temperature down. I find this together with a fan is pretty...