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The latter is definitely the case for me when I was in the office I used to pick up every bug going for years (undiagnosed gradual onset ME) now I’m no longer working I’m out less but I still pick up bugs occasionally - eg in the waiting room at the Drs.

Am I being unnecessarily suspicious/ jumping ahead too far that this seems to be pointing towards SSRIs as a potential treatment.

Speaking as milder end of moderate person Nausea yes mainly in mornings Tinnitus/ringing in the ears yes unpredictably. Vomiting no Slurred speech no The rest very occasionally restricted to when I’ve drained my energy down to nothing.

Can’t take them as I have high blood pressure and they aren’t allowed with my meds.

i don’t think it is whether the health system is social or private as such. US people struggle with insurance companies eg Brian Vastag. And isn’t the cost of healthcare per capita in the USA significantly more than in Canada and European countries. Maybe more to do with the organisational...

@Action for M.E. wondering how your review of your web content is progressing and what involvement patients are having in it. What are your plans for the pacing booklet which is based on behavioural approach and shouldn’t be left available due to the possible negative impact it could have.

Oh dear that’s not good. I wonder why this journalist picked up on her book it sounds like they must have been speaking to someone with ME who would have mentioned it to them.

Fair point @Invisible Woman I was jumping ahead and envisaging that a care plan for everyone with ME as a basic approach that could be rolled out by the NHS and hoping this might be something simple non PACE based that can replace current approach

-++ for me

That the current guidelines aren’t fit for purpose was caused by the original grand sanctimonious delusion. That NICE eventually accepted they aren’t fit for purpose is indicative that they have probably moved away from that delusion but the evidence that NICE aren’t still in the same basket...

Fabulous I particularly liked ‘grand sanctimonious delusion’. Made me smile thank you @Brian Hughes

I had the usual experience last Christmas of picking up the bug that was going round the family. In this case a bad cold very runny nose streaming eyes I felt awful for 3 weeks and spent most of that in bed. Bugs definitely make me feel worse than usual and it takes me a while to shake them off.

Sounds just about on the level of the shopping bag study :wtf:

And there you go the grauniad coming out with full on dodgy stuff Sharpe in person no less. Give me daily fail on ME any day

I guess a minimum viable product treatment plan would involve having an annual review to look at symptoms to make sure anything that could potentially be helped wasn’t being overlooked. This would mean patients would have permission and a forum to discuss symptoms and Drs would have a better...

I’ve only ever used a wheelchair twice (being pushed by airport assistance). I felt it was liberating and a bit humiliating all at the same time. I was nearly left behind and only boarded right at the last minute because of a mistake and that was very stressful I imagine this guy was totally...

Would be a good idea to ask people if they are ok being mentioned on the list.

They could have stuck to their parameters by having on the committee some NHS people with no involvement with CFS clinics/MUS as “independents” The chair and vice chair are going to have a tough job if they are to try to achieve anything other than a total whitewash with the committee as...

But i would argue that people working in NHS CFS ME services do indeed have a vested interest in the continuing provision of PACE based approach because that is their expertise and without it they will need to find alternative roles/thinking. Depending on their ability to cope with change and...

Fair play to the fail their general coverage of ME in the last year has been better than the so called progressive grauniad. In this case they appear to have been knobbled by this Dr person to promote her book.