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Hadn’t heard of BNN so I looked at about us https://bnn.network/about/. Still not much the wiser to be honest other than it was started by one guy Gurbaksh Chahal. the article is at least NICE compliant with the wording in the final paragraph

Those are excellent comments you’ve highlighted @Andy thanks for sharing it helps to see people getting sensible messages up.

@Kalliope Unexplainable. Yes they let the cat out of the bag there :whistle:

One for @dave30th

Hi all just a reminder as we come up to two months of the petition being live that if you’ve shared it on social media or in any groups it is a good idea to post it again as algorithms often mean that people who follow you don’t necessarily pick up posts in their feeds.

Simple example of the negative side of mindfulness etc I was doing a yoga class years ago at a spa day and at the end there was a guided meditation which involved going back to last time you were on a beach, no negatives there…. Except last time I had been on a beach several weeks earlier that...

I can’t be doing with this some exciting news is coming soon businesses. I’m fully prepared to admit if my expectation that it will be underwhelming is wrong. I’m quite grumpy today so this kind of thing bothers more than it usually would

Thanks I’ll message you later on today @EndME

Welcome to the forum @Eddie its good to hear from people who have taken part in studies

Thanks @Solstice I see Millions Missing Holland have already shared the petition on their Facebook. I have pinged them a message

Bumping any offers to help contact? Translate a couple of paragraphs?

yes employability spot on @Kitty pretty much describes my experience. There’s no duty for an employer however large (in my case thousands of employees) to redeploy you to a job that has been tailored to your current capacity. And in any employment situation unless a family business you have to...

Hi Can any Netherlands based members help us with connecting with organisations we’ve already approached and let us know of any other organisations to contact. ME CVS Nederland - www.mecvs.nl info@mecvs.nl Email sent 14 Sep- followup sent 4 Oct ME/CVS Vereniging -...

Shameful heel digging

If the billboards can leverage social media and some press coverage as well as the on street visibility that seems a good strategy.

Yeah it’s called gradual onset ME and quite a substantial % have this type of onset. I can’t quote a source but I have 1/3 in my head from somewhere. I guess where people have acute onset individuals and medic’s don’t look back in the same depth at the history as when it has gradually become...

LocalME comprises 52 local support and advocacy groups across the UK as well as outside UK. https://groups.io/g/LocalME Thank you for signing and supporting, and for the help of forum member @Suffolkres

Because tricyclics aren’t very effective for depression they seem to use them for pain, sleep obviously works for a bit cos of sedative effect. The CBT of medications - if stuck give amitryptiline a try. It makes it seem like they’re doing something useful.

So they gave all those people amitryptiline with various potential side effects including sedative hangover and only 11% more than placebo perceived any benefit. How can that be cost effective.

Looks likely to close https://www.facebook.com/share/C6SPvt8ALLGHLBUh/?mibextid=K35XfP