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The really disheartening thing is this is probably someone's PhD work, so yet another keen young psychologist being taught crap methodology and believing the narrative spun by Crawley Chalder about fear avoidance beliefs perpetuating ME. Sonya C did say at the AfME AGM, this year I think...

It's in Journal of Behavioral medicine, so it's quite likely that most of the articles have similar flaws, not sure it's worth the time to write!

Not that I know of. @Graham did you hear anymore from this family in Oxted?

Thanks Nasim, the hold the psych lobby have over the UK media is just unbelievable. Like numerous other aspects of ME.

My reply from the Chairman is broadly similar, but other than thanking him I am not following it up right now as I'm concentrating on emailing etc friends/family and others re Thursday debate. It would be a good idea to prioritise matters to be raised with AfME as Clare has kindly agreed to...

You can't please everyone all the time! But please know that loads of us are thrilled with all you have done and continue to do. Please keep going if feasible.

Looking fwd to the new series Gary (note to self NOT barry!)

Jane Colby posted on a parents Facebook Group that Tymes Trust had made open access possible for this, which is great. They do SO much for children threatened with social services etc.

Thanks @Gecko for all that you and other MEAction people are doing

Wonder if @dave30th fancies a visit to Manchester. It is also pretty close to ME Awareness Day.. Or maybe @Brian Hughes would have some interesting questions to ask.

Looks interesting.....

Looks a bit mixed. Am wondering what "hippo" therapy is? Possibly lost in translation or probably better left to the imagination.

Hopefully MEA and MEAction will be drafting their press releases as soon as the MP letters advice is out.

I would be sure to come off it (if that is your decision) very very slowly.

@Kalliope would it be worth starting a new thread on Prof Lie's work. It seems pretty important to me?

Didn't @dave30th say he was planning to look at the SMC, following the excessive media coverage of Pariante's "not much to see here" trial.

I took it to mean that they had links at the time of the PACE trial. This does not necessarily mean that these links then stopped.

Sounds like a great motion to me.

There is also an "Employers' guide to ME" booklet; https://www.actionforme.org.uk/uploads/pdfs/employers-guide-to-me-booklet-2016.pdf I am just beginning to skim this... Also: https://www.actionforme.org.uk/uploads/pdfs/me-and-work-2016.pdf These both seem to be based on the SEE ME project...

I have vague memories of Wesseley saying something incriminating, probably in one of his "Standing up for science/poor little me, all those militant Me activists are out to get me" speeches. He was referring to saying something like "well we had to change the criteria otherwise no-one would have...