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Film with professor and paediatrician Ola Didrik Saugstad from Oslo university hospital. I am quite brain fogged now, so there might be mistakes/inaccuracies, but here is a quick translation of what's being said: He says it seems health care personell often lacks in understanding ME. That the...

David Tuller is giving a talk soon in Drammen, Norway about the PACE-trial. It'll be live-streamed here at 18.00 PM (GMT+1)

Video with member of Parliament Lise Christoffersen (Labour Party). She praises the Norwegian ME Association for their work and acknowledges that there is too little knowledge about ME in the health care system. - There is little treatment, there is little research. This leads to ME patients...

A poster in English made for this campaign week

Video with MD and doctoral candidate Katarina Lien. She says the attitudes towards ME are changing, but there is still a long way to go. She believes there is a great need for patients for a place to turn to and receive some kind of follow up. Many patients have told her they feel left to...

Video with prof. Kristian Sommerfelt, paediatric neurologist at Haukeland university hospital. He has over 20 years experience with ME and is a very popular lecturer on the disease. In this video he talks about school and pupils with ME. He says we need increased knowledge about ME in general...

The Minister of Health and Care Services Bent Høie has written a response to this open letter Bent Høie: Forskning på ME er viktig for meg og regjeringen google translation: ME research is important for me and for the government I know it's hard to be ill with ME. People with ME experience...

The campaign is officially launched with this greeting from the chairman of the board of the Norwegian ME Association, Bjørn K. Getz Wold. He talks about the situation for ME-patients, points to USA (IOM-report, research funding from NIH, OMF, no recommendation of CBT/GET) and suggests the...

From two days ago but I don't think it's been posted here yet: SBS Insight by Simon Del Favero: I was in denial and ashamed by my CFS Looking to the future I am heartened by the rapidly accelerating research breakthroughs that are happening internationally. Since I was first diagnosed in 2011...

2018 Campaign week from the Norwegian ME Association to increase knowledge The Norwegian ME Association is launching a week long campaign to raise awareness and knowledge about ME. It starts off tomorrow and ends Saturday. It's the first time a campaign like this has been done in Norway, and...

And I'm very grateful for you doing that, @Andy :-)

hmm - the journal is called "journal of Ayurveda and Integrative Medicine" is the article still of interest? (haven't had a chance to look at it yet)

A mother to a daughter with severe ME has written a letter-to-the-editor directed to the Prime Minister and Minister of Health. She describes her family's meeting with the health care system and asks for more knowledge about ME and more funds for research. Kjære Statsminister Erna Solberg og...

I'd actually welcome a comparative study on LP and CBT. At least in Norway prof. Wyller, the National Advisory Unit and LP coaches claim that LP has elements of CBT, and CBT has proven to have some effect against ME, ergo LP has effect against ME. If it was done properly and by independent...

And even the research council included a patient who had recovered from LP to advice them. But still prof. Wyller's application for funds to his trial on ME and LP got turned down, and there was hell. Several letters-to-the-editor and social media debate about allowing pesky patients to have a...

:rofl: No worries. Just do a STOP-movement with your hand and visualise a palm tree, and you'll be fine. It'll change your brain, honest! And it works for EVERYTHING, so the rest of your office really should join in.

This is the link about the LP review, yes? How odd, it works fine for me: https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=104336 ETA: The link in the first post is now corrected