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@Wonko, so very very sorry to hear that you didn't get justice at your Tribunal. :cry: Sending heartening hugs from Liverpool. :hug: :hug: :hug: :hug: :hug:

I have an NHS wheelchair, but only got it post PIP face to face. Though at the time I was waiting for an appointment. My previous wheelchair was "borrowed" in that the local ME group got the local council to donate most of the cost of it. I was the only person prepared to store it in my house...

Or maybe they should just disband. Let those who are serious about proper biological research join another organisation that is patient friendly. Or set up one that is patient friendly and hopefully refuse any psychiatrists membership.

I am horrified that BACME are going to vote at their conference whether to join CMRC. And even more horrified that it appears CMRC hasn't complained about it. I have no confidence in CMRC after reading about that. I don't understand why nobody in CMRC appears to understand why patients might be...

CP to be leading - from the minutes that's Carmine Pariante? If so we're out of the frying pan into the fire. Or even worse. Initially I was happy that EC was going, but now I'm even more worried than if she'd stayed.

The Squawkbox has taken this up with DWP. DWP Does Not Deny Asking Leisure Facilities For CCTV Footage Or Fake Friending Disabled People Read in full, including DWP response, at the link above.

HAHAHAHAHAHHHHHHAAAAAA Crawley do useful work? What planet do you live on? (sorry) She'll continue to do whatever brings in the spondulicks and the possibility of a dame-hood. After all, Sir Simon made it to being knighted, so why not Lady Esther? :sick:

Have to say that was my first thought too... Followed by GET. Cos if you can get better with CBT you'll be deconditioned and need to get back to full health as lets face it stuff like appendicitis is merely MUS. [/sarcasm]

Fightback4justice have had problems with people trolling on Facebook and also pretending to be them. So of course you will see "some other people" raising concerns. Without Fightback4justice's help I would not have moved from basic Activities of Daily Living and the Moving Around activities to...

It's from the founder of Fightback4justice and is on their Facebook page. I don't know if you can access it without joining the group. I would say that Michelle knows what's going on with DWP, so this is true. :eek: :sick: :arghh:

Can't say I find any placebo effect from B12 injections. Or at least not thus far! Had loading dose last summer, 6 injections alternate days, plus folic acid pills. Since then have had one more injection, 3 months later, and am almost due another. Still on folic acid too. Nurse practitioners...

Used to love to sing... As a child when bedtime I used to lie in bed and sing all the songs I knew. Back then it was mostly hymns! :rolleyes: What we used to sing in school. And when I'd sung every song I knew I'd finish off with God Save the Queen! :laugh: Suspect parents were relieved when...

Too far for me to travel, but wish I could. Sounds a lovely event. Perhaps record it and sell CDs or online stuff to raise money for research? I'm sure there's techie folks here who could advise? I'd buy! :)

Lets hope the beauty salons don't turn up! ;) :wtf: :eek:

Or place markers to keep free for NHD & HPA? And A.N. other. Who knows! :laugh:

Why on earth is "Body Beautiful" a stakeholder? They seem to be a series of beauty salons around the country. The so called "Body Beautiful Clinic" is similar, though it says it's a "beauty therapy centre". What does that have to do with ME and being a stakeholder on the Nice Guidelines? :wtf...

Bit out of things at the mo, but found this which might be relevant? Looks as if the "previous" med adviser was Mansel Aylward? http://www.meactionuk.org.uk/PACE-PIs-and-the-DWP.htm

My MP wasn't able to go to the debate, but I had a kind email from her yesterday: The thing about Tribunal was that I thanked her for her help with my complaint to Atos, and filled her in on outcome at Tribunal, which I hadn't been able to do before. Mainly because attending the Tribunal...

There were two email addies for her, I assume the second is probably her researcher (wrote to both). But I'm not sure if others can attend - these things are for MPs only? OK, yes, public may get in to some of these things, but suspect not much space. So I don't know if her researcher can attend...

Have written to my MP. She is very busy - she's one of the really hard working ones - so doubt she'll be able to attend, but at least I've done my best! She will be sick of getting emails from me - seem to write to her half a dozen times a year at least! She really is great though, and either...