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Seeing as this is an open thread as against For Members Only I sent the link to my husband. His comment was "It's a damn fine letter" and he'd like his signature to be added too. John Wallace.

I forgot to ask in my earlier post to be added to the signatures. Maggie Wallace. Thanks @Andy for me alerting me to the thread on the advert for the Chair of the committee. :) I'm still at sixes and sevens after journey on Solstice day to Wales. :asleep:

Not sure if it's been mentioned anywhere here yet, but NICE are advertising for a Chair for the committee. Had this link yesterday in an email on a List I'm a member of https://www.nice.org.uk/get-involved/join-a-committee/chair--diagnosis-and-management-cfs-me-gc

My experience as a mother of 2 girls is that they had oodles of snotty infections as soon as they started mixing with other kids at nursery and then school. I suspect most (if not all!) other mothers have similar experience. My girls now do with their kids. If she's talking of more serious...

Couldn't shave my head as I'd look like a goblin :emoji_japanese_goblin:- have huge sticky out ears that unkind girls at school used to tease me about. :cry: Also have straight and thin hair so they used to say Your ears are sticking through your hair. Now that may not sound so bad, but I knew...

For a some time now I've been following the blog of Wendy, a lovely lady who has early onset dementia. She is very involved with dementia research. Patients are treated with respect, and researchers involve them. I was particularly taken with one of Wendy's recent blog posts...

@Esther12 thank you for the link to the stuff about the Norwegian study. I'll try read it better tomorrow (or whenever brain returns from its holiday :asleep: ) as only briefly scanned this evening. An interesting thread that I really must try get my head around. I don't think you sounded over...

@Esther12, I agree the concerns over vaccinations is a different issue to concerns over ME research. I'm sorry I put things so badly in my earlier post. :cry: As I said earlier I've had an over extended week and am knackered and brain dead. :walkingdead On top of about 3 weeks of a foul cough...

I forgot to say that comments are still open on the article... Apart from the weasel the HPV vaccine may cause something that looks very like severe ME - the doctor getting the prize is publicising how safe the vaccine is. I do hope somebody can make some sort of comment? I don't have 2...

Doctor wins 2017 John Maddox prize for countering HPV vaccine misinformation The Guardian Previous winners include the psychiatrist Simon Wessely, who faced death threats for his work on chronic fatigue syndrome and mental health, and Elizabeth Loftus, whose work on false memories propelled her...

This meeting was open to the public, she couldn't put a picture of a patient because of Medical Confidentiality surely? She really is a piece of work! :sick:

I thought it was "dreckly". ;) I'm not Cornish, but have a friend from Devon... Of course the Devon pronunciation may well be different. :rofl:

Thank you for a much needed laugh! :)

I just started a new thread in the Health News and Research unrelated to ME/CFS Forum... https://www.theguardian.com/healthcare-network/2017/nov/21/finance-trumps-patients-uk-healthcare-needs-inquiry Various links to papers I haven't had time to look at yet. But one bit that seemed relevant...

I don't think this tells us anything we didn't know already, but it's nice to see the Ioannidis paper quoted, and also a lot more papers on how bad research papers can be. Not had time to look into them yet, plus prob won't in a timely manner as have to try travel home tomorrow. Any one else up...

Actually I'm surprised it's as cheap as £7000. Cost of copies of all evidence for DWP, 3 Tribunal Members, Claimant and (if they have one) Claimant's advocate. My full bundle was something like 240 pages I think. Any new evidence (I took colour prints of photos of ramp outside our caravan as...

Just went and checked again, and another 93 responses have been added since yesterday, including mine :) (currently page 10 though that may change), November 10, 2017 at 12:55 PM. So it might be worth you re-checking @It's M.E. Linda? Good on you for emailing them though - I wasn't sure I'd...

I read somewhere (very sorry, I can't remember where :oops: ) that it costs £7,000 for a Tribunal. That cost should be paid by the assessment company for every one that the claimant "wins". That way they might be more inclined to get it right first time! ATOS has changed its name. It's now...

I looked for mine just now. Not there. But despite it closing on 10th, there are posts dated 11th, 12th and 13th. I spent a whole morning on my submission. When I copied it in it wouldn't all fit, so I cut it by half before posting (I do wish they had mentioned there was a space limit...

Have you been looking at too many Martin Rowson cartoons?