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well the text from that idiot Dr who said there is no swelling with ME showed exactly what people were talking about. Who is Ben the consultant who has ME? MEAction or ME Association need to be working with him if not already. He sounded like he might be fairly newly diagnosed.

keeping it tightly controlled as the Drs have to apply to expert panel for approval

I couldnt find anything on their site about ME/CFS maybe an opportunity to get them to do something?? they have got Fibro on there

to me this just seems like rank hypocrisy from F Godlee

Still getting the holding page

@JaimeS this one from Wessely mentions it as well Psychological Medicine 2006 INVITED REVIEW The act of diagnosis: pros and cons of labelling chronic fatigue syndrome MARCU S J. H. HU IBER S1 * AND SIMON WESSELY2 in the section on good old 'illness perception' Ultimately, a pessimistic illness...

there'll be folks all over the country calling for this on the NHS especially for children and perhaps there'll be a trial funded by some private trust - the 'RUBARB' trial

is this off another thread @Sean

Well we did all tell him a couple of weeks back when he was struggling to take things steady that he didn’t need to do weekly episodes

only virus I know Ive had is chicken pox - Ive had various things that Ive been told were viral but dont know what the specific virus was

another tea snorter from JE :D

possibly, I suspect the translation from French hasnt helped with clarity

From page 44 of GET therapists manual: Long term goals (Six months or longer) These may be functional activities, hobbies, or an exercise that the participant would like to do. It may be an activity they used to enjoy, or a new activity. For example: • Walking to the shops three times a week. •...

Steve Topple again :thumbup:

He has done ok because he managed to weather the attempts to undermine him

the behaviour change industry ie CBT industry all in all its just another brick in the wall

@mariovitali just tagging you in case this is relevant

nice one @Sly Saint

picked this up from facebook post by International Alliance for ME http://www.bmsystems.net/download/press-release-bmsystems-Chronic-Fatigue-Syndrome-validation-english-CS-ASFC-17072018.pdf Paris, France July 17, 2018: The Scientific Committee of the French Chronic Fatigue Syndrome Association...

just received this email We have some exciting news to share. Thanks to everyone’s hard work and efforts, we are able to expand our team! We haven’t fully funded the UK position (if you want to help us get to our goal, go here), but there is too much happening to wait! We will be hiring a UK...