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Absolutely – I think one of the most problematic things is what 'able to do' means. There's a perception among employers and personnel managers that the answer to this question is both concrete and permanent for most disabled people. Q: "Can you stand unaided?" A: "No, I'm paralysed from the...

I think it might be useful to find an additional measure when it comes to ME. I don't consider myself housebound at all, for instance, but I can't get out without a wheelchair and my number of hours out per week are very limited. One way of distinguishing between levels of severity might be to...

I'm not disagreeing with you – or anyone else for that matter – but my MP, and his very long-standing predecessor, would say exactly the same. Just swap the word 'citizen' for 'MP'. So much of the work and energy of a political party is focused on the drive to be seen to oppose other political...

Does this help, @Barry? It's one of several tables from the file. (I don't 'do' figures! :laugh:)

Just came to post it myself! I was (pleasantly) surprised that it focuses more on ME than LC.

It can happen with insect stings, so I'm guessing it is possible?

My only experience of hospices in the UK is providing respite care for people who have high levels of need but are not terminally ill. A couple of elderly relatives have benefitted from it whilst the children who cared from them took a holiday. One auntie said it was always a nice holiday for...

I meant to include a comment that it appeared to suggest that large numbers of people readmitted in a serious condition are being included in the Long Covid cohort...but I was over-tired, and forgot. :rolleyes: Having re-read the article this morning, it looks like two reports hashed together...

From The Guardian: Almost 30% of Covid patients in England readmitted to hospital after discharge – study [as yet unpublished] 'A total of 47,780 individuals who had a hospital episode between 1 January 2020 and 31 August 2020 with a primary diagnosis of Covid-19 were compared with a control...

Lane swimming = zero kids and zero noise! Beautifully antisocial, in fact, nobody stops for long enough to talk. There's a maximum of five in a lane, and most people use the right lane for their pace and will pause at the wall to let slightly faster swimmers pass. All very polite and organised...

It's a danger, but don't think we will get the full pictures for a long time. I and three friends, for instance, 'recovered' to over 85% of previous function for years at a time before relapse. The trigger illnesses were hepatitis, gastroenteritis, EBV, and possible EBV. Had a doctor been...

Yup! Best sleep tracker is common sense; people usually know pretty well whether or not they're getting enough for their current needs.

Will still coincide with the start of DecodeME? I realise the ME awareness events take place worldwide, but in the UK it would be a good opportunity to mark the beginning of something really hopeful and positive.

The person suggesting it might be trying to be helpful, but appears to have little idea about ME. If it were me, I wouldn't waste any more energy on it. If it's someone important, you could perhaps respond with information about the reality of living with ME? I've found some of the stuff...

Terry's nails for decades, but can't remember whether present pre-ME, as it's 45 years ago. Do have vertical ridges, but they're normal by middle age. Psoriatic arthritis since 2012, but no skin disease or nail signs – opposite to mum, who had occasional mild skin psoriasis but no arthritis.

Likely they will accept them; also accept evidence from other sources, e.g. employer statement, OT assessment, etc. Advice from Fightback was assume they won't, and submit med records yourself. Even if they do contact, they may only allow a week for reply; GP may be too busy to respond in...

1) Much less power/speed, slightly less endurance; 2) Less pain, less PEM for apparently more effort; 3) Only comparing against daily living, as unable to walk or cycle well enough to measure. No knowledge of physiology, but: 1) Prone/supine position during effort may have small effect; 2)...

That sounds like a really important step forward, @Binkie4 – it must be quite hard enough to live with these conditions, without the added insult of medics writing you off as 'just' overweight. :mad:

Bafflingly fleeting enlargement, too; my neck glands will swell up until for as little as an hour, before subsiding again. A gift of Christmas mince pies last month reminded me that I can often trigger the swelling simply by eating sweet foods. Am not keeping up with posts very well because my...

It may not be written for the paper – he has a column, but he's not a full-time staffer. Though it would be good to get a well-written Guardian piece focusing on this issue for once! If he gets it right, it supports and informs Covid patients and throws a bit more public shade on those who've...