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Here are some I made with a meme generator

I do need to put them somewhere, I don’t like Pinterest but I forget why. I don’t want. 2 instas. Lots are nicked from chronic illness humour.

What I don’t have…technical ability

This is just a random idea but it’s “quick and dirty” one I was able to deploy once in the past. I collect memes about ME in a folder. I can put together a collection of them in minutes. It can give an overview of the challenges we face, the things which affect us, the unseen and unheard...

Linked slightly to our discussions about the BACME guide to managing ME Oct 25 I was perusing my local ICB for something else and found a document which explains they don’t commission any inpatient beds for ME/CFS. Which we already knew; nowhere does. What I did find interesting is this...

It is! Thank you!

I saw a blog promoted on socials the other day by Tom Kindlon, but I can’t find it now. Anyway it was an OT who explained that pacing is “harm reduction” (or should be) that it’s not compatible with real life to expect you can do it brilliantly but each bit of pacing you do well reduces the...

I think Kate got into debt paying for care, but was highlighting that many people wouldn’t have even the option of taking on that much debt. Which was a fair point for her to make.

The usual suspects have terribly high sickness - HMRC and DWP. Mental health was the most common reason. By grade the lower and higher grades had higher sickness, by region London had lowest. “Civil servants” includes the person working at the job centre, the person writing to you because you...

May their memory be a blessing

Simon, the feeling was mutual.

Working as a PIP assessor is so stressful that leaving healthcare seems like a better alternative. Plus there are plenty of healthcare workers who don’t do it because of a vocation but for interesting work, job security etc.

Working in the NHS is so stressful that being an assessor starts to seem like a decent alternative.

Looking after your own needs when you look after others doesn’t cause moral injury though, it’s usually more depression or guilt.

That’s a slightly different thing. Moral distress or injury is where you go into a role to do “good” and help people, but in the role you’re prevented from doing good, in fact you’re doing bad. So if you become a PiP assessor to help the “genuinely” disabled but actually you have to see 20...

Moral distress in the workplace, can lead to PTSD. Very common in the modern NHS https://www.bma.org.uk/media/4209/bma-moral-distress-injury-survey-report-june-2021.pdf

Best glass nail file I’ve found is from Shein. They need to be the “etched” type rather than coated in ground glass. Cost of living blah blah has reduced to junk, all of the metal beauty items (nail file, tweezers etc) I used to use for years. They have become so flimsy as to be useless...

I’ve seen it happen in broadsheets, it’s quite common

Is the problem that everyone isn’t exercising enough? Not just us, but ordinary people too! (Is this sarcasm? I might be being facetious IDK) How do you find someone as sedentary as us who isn’t ill?

I was in rolling PEM for a few years, there were diminishing returns each time but I was convinced I had to keep working. No idea if I did catch covid or just massively crashed from that, losing my job etc but lockdown was very convenient. I struggled to brush my teeth or shower, I didn't go...