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How does one attend one of these?

Trying to extrapolate the total number of appointments and patients using this logic 10% would be double the 21 765 not half.

@Liv aka Mrs Sowester please make sure you get it checked out too if you haven’t already. My brother’s partner (healthy) has just undergone an emergency operation because it was discovered she had a nearly fully blocked artery between the brain and the heart. Her only symptoms were episodic...

Has this been communicated to Professor Jason?

I forget conversations I've recently had with my husband. I forget where he's gone or how long it will be until he's back. (I used to complain that he didn't tell me) I forget multiple times over the course of a day that there are people coming for dinner. I forget what day it is many times a...

My daughter's sleep test was also in a lab, watched over by a sleep technician. They woke her up every time she changed position to her side or front and insisted she stay on her back. Yes she may spend some portion of the night of her back that she is not aware of, but she needed to know...

How did you conclude sleep apnoea was a misdiagnosis? My daughter has a diagnosis of sleep apnoea but she is annoyed that for the test they insisted that she sleep on her back, which she never does naturally. A far more useful test would have been to check for sleep apnoea in her preferred...

This was my thought too. The PACE trial authors would be proud of those who say they're recovered. That is after all their definition of recovery. I think you will find that patients who have had CBT and GET are also indoctrinated with the narrative that support groups are harmful and that...

I too recognise the same experiences as @Invisible Woman and @Skycloud At my worst I can't hold a thought long enough to think it. It's a bit like walking into a room and not remembering why you're there but much worse. It's the first couple of words in my head of a thought train that I then...

I haven't read the linked paper yet so this may already be covered in there. What you said about folic acid is what I was about to say about Cyanocobalamin. It is the synthetic form of the vitamin and it seems that some can convert it to usable form and others can't. That can be due to genetic...

Once again it's where we need objective markers. Of course it's important whether or not a treatment makes a patient feel better - but that isn't the primary goal in treating illness. Imagine if chemotherapy was appraised by how it made patients feel rather than on what it achieved in stopping...

Their aim is not to help people, it's to "reduce the burden on society". They're really not achieving their goal with people with mental health issues. People with ME/CFS however they obviously believe they can achieve better results (for themselves).

Very interesting, thanks for sharing. 1. Are you happy to have your real name revealed? Both the file name and the test result sheet has your name 2. I'm not seeing the low e-coli. Am I missing something? 3. While some of your results are low, they don't seem too far out of range. It looks like...

I do think they believe they are giving the patients hope by indicating they are so close to solving it. I also think they believe they have to be very public to attract research dollars. I wouldn't say they are rolling in money, and I doubt the money is of personal benefit to them.

I agree. The overstated results have at least 2 indirect outcomes that have potential for harm. 1. If the funders believe this group have the breakthrough they won't fund alternative research/researchers. 2. Articles like this make it seem that ME/CFS is easily diagnosed and quite possibly...

I don't really know how research groups work in general. The research group at Griffith is composed of Professors Gradisnik and Staines and a bunch of Phd students each looking for a thesis. Something may come of it or it may not. I don't expect there will be any considerable budget for phd...

Hi Nathalie, sorry I've been away, but I see that Simone has answered your question.

This update came about as a direct result of one Australian patient's interaction with those responsible for the content. It's a work in progress and sounds like they are open to revising further given the appropriately referenced research.

Welcome @Nathalie Wright Thank you for tackling this subject. Hopefully your work in the UK can snowball and help other countries too. This needs attention in Australia too where people are not considered fully treated and therefore being denied benefits unless they do GET and CBT.

Multifocals are working for me. I've had them for the last 3 script changes now. They only work until my eyes are too tired to focus, but that's not because of the multifocals.