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Exactly! You absolutely understand my concern. I might see how functional I am over the next week without it, compare my sympathetic nervous system indicators and reassess from there. The less commonplace supplements Dr Myhill recommends includes the acetyl l carnitine, NAD and CoQ10. There is a...

I’m gradually experimenting with acetyl l carnitine capsules. I am feeling better. More mental clarity. More ability to sit down and focus on a task. But please note it is coinciding with a change in diet (returning to low sugar and carbs) and getting into some very good habits regarding naps...

Would a quiet email to the corresponding author be appropriate? To ask what science denial they are referring to in regards the CFS and perhaps direct them to some resource that leaves them better informed regarding the bad science that has been so damaging. Brain not working very well today.

Paradigme shift to disequilibrium in the genesis of orthostatic intolerance in patients with chronic fatigue syndrome K Miwa European Heart Journal, Volume 40, Issue Supplement_1, October 2019 https://doi.org/10.1093/eurheartj/ehz746.0311

It’s my opinion that one of the best things an advocacy agency can do when approaching the science is to be very clear about the category of evidence with which they are dealing. My understanding is that @Andy is keen for a document outlining the first category I have here. That would be...

Would this resource be available to international ME advocacy groups? ME Awareness NZ would almost certainly make use of such a resource. And with such limited capacities doing this work once is ideal. I wish I had more brain juice to jump in and start collating. But I will start thinking about...

Hehehe! Such a way with words. :emoji_laughing:

That would be interesting. I am very aware that cognition burns a lot of energy. Study often left me tired when I was healthy. Now it’s even more obvious.

Air hunger is a symptom I experience with ME. I don’t associate it with winter tho. Some days I’m having a good reasonably PEM-free day, just sitting down minding my own business and boom! Suddenly I’m gasping for air. It is not a panic attack. I’m breathing normally. Nice, slow deep breaths...

@Medfeb :party::emoji_clap: I affirm the feedback @Ravn has given. The main issue for me is the possibility of missing mild cases when there is the most opportunity for a rapid diagnosis and appropriate support to preserve QOL. Great summary! :thumbup: Also @Trish makes a good point. Flu-like...

I think you have to take into account what the document is and what it isn’t. The document is an extremely brief diagnostic assist for clinicians. It isn’t a new definition of ME/CFS. I imagine they would HAVE to comply with one of the definitions that has reached a consensus. In that regard I...

If anyone is willing, we wouldn’t mind a few eyes reading the following page currently being edited. Looking out for obvious errors or opportunities to articulate the research in more accurate or more layperson-friendly ways. https://m.e.awareness.nz/research Tate’s research in particular is not...

If anyone has any insight regarding how to explain this study to laypeople, I’m keen to hear suggestions. It is for this page currently being edited by ME Awareness NZ team. We expect both laypeople and medical personnel to read it. https://m.e.awareness.nz/research Conversation seeking general...

M.E. Awareness NZ is investigating whether New Zealand GPs can do these CME. If anyone has any thoughts about them, recommendations, or even contacts to assist us in exploring this possibility we would appreciate hearing.

Yay that’s awesome! I made another more serious one. Didn’t know how to emphasis the humour without getting wordy so worded it for impact instead. [EDIT] link to one place where Ron Davis criticises the psychosomatic model for ME as barbaric and malpractice. Quote is in the audio not in the...

Throw that into the Member Only discussion over here https://www.s4me.info/threads/making-complaints-regarding-get-and-cbt-and-the-spite-currently-pouring-from-the-media.10563/. Let’s get these ideas brewing.

My mum made her first MEME... or at least we killed ourselves laughing when she described it and I made it for her. Original images are royalty free. Feel free to onshare.

I have recently made a resource to be edited and added to regarding Professional Codes of Conduct/Ethics for relevant fields. https://www.s4me.info/threads/professional-codes-of-conduct-for-psychiatry-psychology-medicine.10527/ I have just now made a thread to encourage discussion about...

I have recently made a resource to be edited and added to regarding Professional Codes of Conduct/Ethics for relevant fields. https://www.s4me.info/threads/professional-codes-of-conduct-for-psychiatry-psychology-medicine.10527/ I have just now made a thread to encourage discussion about...

This is a question I also have and would love to know more about. The only chemistry I studied in my undergraduate was when cognitive psych was part of my course material, so I acknowledge my limitations. But many of us trace back the initial onset of symptoms to some sort of stress to our...